English 
Amit kumar
My younger brother Late Amit kumar was suffering from Hemophilia he was having deficiency of VIIIA since his childhood, initially he was having black marks on his body later started with heavy bleeding from his teeth and later all his body joints started getting swelled with big in size and black in color, he was […]
Annie
Happy World Hemophilia Day to the global bleeding disorders community! Thank you for sharing your inspiring stories and let us continue celebrating this wonderful day for many more years to come…
Anastasia R
I have been a long-time supporter of the hemophilia community – several family members and ancestors suffered from hemophilia-A. It is inspiring to see all the stories on this web page of people thriving– keep on fighting the good fight! I’m proud of all of you!
Nonhlanhla Sokhela
I’m Nonhlanhla Sokhela 31 years of age from South Africa.i was diagnosed with Heamophilia A with Factor VIII deficiency in 2020 when i had my 3rd child.All along i never knew about the disease and never knew I had it. I’ve had to take very expensive medications some which my medical aid refused to pay […]
Bouna
Je m’appelle Bouna Sow. J’habite à Nouakchott, en Mauritanie, je suis père de 4 enfants hémophiles de type A sévère. Ma femme avait déjà perdu son fils à Dakar, au Sénégal avant notre rencontre, en plus de ses deux frères. Mes enfants étaient suivis au Sénégal avant. Maintenant, ils le sont ici. Mais surtout grâce […]
Juliana Howard
Juliana Howard Story (Mama Michael) – Ghana Decades passed by , my son and I had to endure the nitty-gritty of the haemophilia disease.Inspite of the bleeds and pain he endured,I equally went through emotional trauma, financial difficulties,stress and above all the fear of the unknown always stared at me.l needed to devote my all […]
Elizabeth Kearney
I became a genetic counselor because of my family’s experience with hemophilia A. For World Hemophilia Day, perhaps it is appropriate to share my story. I first learned about hemophilia A in my family and X-linked inheritance from my mother, who was a nurse, when I was about 14 years old. I remember the moment […]
K. ARAVIND NIKHIL
I am K. Aravind Nikhil, Severe Hemophilia A with Inhibitors from Visakhapatnam Chapter, India. I believe that though the entire world had changed its living pattern like living with loneliness due to COVID-19, our Hemophilia Community has not changed to loneliness, but shown its togetherness more strongly. Though we are following COVID rules and lockdown, […]
francis mbahati
Am Francis mbahati from Kenya hemophiliac. I lack factor 8 in my blood. I have been suffering experiencing all simptoms of this illness. This has made me so much unworthy in my life since am not able to compete with my fellow friends in games and also in manual work which requires full body power. […]
Syed Shabiatan
Transformation after 20 years as a Hemophilic. The year 2003 was the vintage year in my life when after the grueling 20 years I was diagnosed with severe Hemophilia-A. This was the time when I had fully apprehended the dismal consequences of Hemophilia. It had suffered me from multiple joint distortion at fore and hind […]