Mohamed El-Deeb

My name is Mohammed Soliman and I am from Egypt, I am blessed with severe hemophilia A. Being a hemophilic patient, one of three hemophilia heros in my familly, I have gone through a lot of difficult times specially when it comes to deal with hemophilia in a developing country where there is a lack […]

Umar Khattak

Then and Now of a Hemophilic While living with Hemophilia-A severe is a full time contest and this was become more case-harden when someone like me lives in a remote and under-develop area of North West Pakistan. I opened my eyes when conditions were not favorable, means, no treatment availability for cure and unknowingness about […]

Francisco González

Soy Francisco González Mí historia inicia desde el año y 8 meses de edad, cuando fuí diagnosticado con Hemofilia A Leve, sin antecedentes de Hemofilia por parte de la familia de mi padre ni de mi madre, después de haber tenido complicaciones para detener un sangrado en la boca. #HemoHacksMx Si estás viviendo con este […]

Anna Harris

My son Ted, has severe Hemo B with no family history. I am part of a group of parents who set up a charity called Local Families with Bleeding Disorders in and around London, UK, to support families by families. This year, for World Haemophilia Day we were All In Red by wearing red for […]

Sam Mbunya

Being an Administrator and ensuring that the logistics for people living with hemophilia in Kenya is an amazing opportunity to serve the ever dynamic and also challenging job that I have been doing for the past 5 years. It has indeed changed my life as I serve to change their lives. It’s been humbling, tearful, […]

Chandima Thevarapperuma

It has been a great pleasure to be part of this global community as a haematologist looking after kids with bleeding disorders in Sri Lanka. Wishing you all a happy & healthy World Hemophilia Day !

NSAPU MVULA BASAULA FRANÇOIS-XAVIER V.

Je m’appelle NSAPU MVULA BASAULA François-Xavier Vinnie, suis hémophile de facteur VIII et j’ai aussi un grand frère comme moi. On était diagnostiqué malade depuis nos bas âges. Pour moi, cette maladie est comme toutes autres maladies, la seule différence qui existe entre elles c’est au niveau du traitement. J’ai passé une belle enfance, malgré […]

FELIPE POSADA BRAVO

Holaaa¡ Mi Historia inicia desde los 6 meses de edad cuando fui diagnosticado con Hemofilia A Moderada, Soy Felipe Posada Bravo ya tengo 14 años vivo en Medellín, donde también me diagnosticaron wombilebran com deficiencia del factor 8, he batallado durante toda mi infancia y he podido aceptar que no es una enfermedad sino una […]

Tahreem

A Journey of Life Its not about Perfect. Its about effort and when you bring that effort every single day, that’s where transformation happens. That’s how change occurs. I am Tahreem Habib currently doing BS Biochemistry from Quaid e Azam University Islamabad. I am patient of Bernard Soulier Syndrome; a hematologic disease related to impairment […]

Antonia Luque

Comencé desde hace 30 años a trabajar como voluntaria en la AVH , me di cuenta que mientras todos estuvieran bien , mi hijo también lo estaría , hay que seguir trabajando para darles mejor vida a todas las personas que viven con hemófilia y sus familias