English 
Syed Shabistan
I’m Syed Shabistan, a severe Hemophilia A from Peshawar, Pakistan. I’m the part of spreading the WFH awareness campaign about bleeding disorders all over the globe & especially want to aware & facilitate my own community members of Hemophilia Patients Welfare Society Peshawar, Pakistan
Rana Saifi
اسمي رنا الصيفي وانا مسؤولة الشرق الاوسط في الاتحاد العالمي للهيموفيليا منذ عام ٢٠١٥. الاحتفالات الرائعة باليوم العالمي للهيموفيليا في جميع أنحاء العالم وخاصة في منطقتنا العربية مدعاة للفخر والسرور معا. لدينا منظمات وأعضاء مجتمع افراد نزف ملتزمون بشدة، ومبدعون ونابضون بالحيوية في معظم دول الشرق الأوسط (آمل أن يجد أولئك الذين يكافحون مصدر إلهام […]
Tai-il Kim
My name is Tai-il Kim. I have severe hemophilia A. And I have two sons and a youngest daughter. The daughter is 4 years old and of course a hemA carrier. I usually ask my children to help me when I self-inject to inform them about hemophilia in a friendly way. Yesterday, I had a […]
Kseniya
I have Von Willebrand’s disease. The diagnosis was made only 4 years ago. Now I am receiving preventive treatment. It’s scary to remember what happened before this treatment. This disease has severely undermined my health
Atharv Pareek
My name is Atharv Pareek, I have Severe hemophilia A type disease, due to this disease I am not able to go to school properly nor play with friends, I have to go to the hospital 3 days a week to take the factor VIII. By taking the reason of the factor, my joints are […]
Mouden mohamed
Yes, my story is no difference between it and most of the stories of hemophilia patients at the beginning of my life and at the age of eight months, my mother discovered that I had hemophilia through blue spots on my body as well as bruises. Examination, diagnosis, and providing treatment for me was like […]
Jayden
Hello my name is Guadalupe. My son Jayden is 9 years old and has Severe Hemophilia A & Von Willebrand Type 1. He was diagnosed at the age of 9 months with hemophilia but we didn’t find out about the Von Willebrand until he was around 5 years old. Before we knew about the Von […]
Andrés Pereira
I was born 500 kms far from the capital city of Uruguay. There were no known cases of haemophilia in my family, so when my belly button fell 8 days after I was born and bled more than expected, doctors found ir weird but with pressure it stopped. At three months old I had my […]
Professor(Dr.)Mohammad Golam Rabbani
The brother of a 23-year-old HTC registered severe hemophilia A patient living in a remote coastal area of Bangladesh in the peak Covid19 pandemic in 2020 told me that his brother was slowly losing consciousness during lockdown.I asked him to move to Divisional town with a sea ambulance along with relevant documents and to contact […]
Ayoti Khasiani
It’s World Haemophilia Day!! I am so grateful to be of service to people living with bleeding disorders in Kenya and globally. I have met amazing people, so hardworking, so focused even when they are in so much pain as they experience a bleed (which doesn’t sound an alarm when it’s about to happen). I […]