English 
Sabeen fraz
”My name is Sabeen Faraz. I am 48 years old and a warrior living with Von Willebrand disease. While this condition has presented many obstacles, I have learned that difficulties do not exist to stop us; they exist to teach us how to manage, how to persevere, and how to truly live. I am a […]
Midhat Khalid
In the Silence of Diagnosis: Where My Story Began There is a particular kind of silence that fills a room when a family receives a diagnosis they were never prepared for. I have studied that silence in textbooks, observed it in clinical settings, and read it in the faces of research participants who trusted me […]
Bitty Kurian
Bitty Kurian’s story as part of the World Hemophilia Day 2026 video series: Every journey begins with the first step. For people living with hemophilia, that step is diagnosis. Without it, blame disorders often remain undiagnosed, misunderstood, or misdiagnosed. But with timely and accurate diagnosis, life can change. Diagnosis is not just a label, it […]
Maryam Un nisa
My Journey of Resilience: Living with VWD I am Maryam Un Nisa, a 33-year-old woman from a rural village. Since I was only six months old, I have lived with Type 3 von Willebrand Disease (VWD). My family has felt the weight of this condition deeply; I lost my elder sister to it, and my […]
Leddah Ira Agustin
Every year, we are celebrating the World Hemophilia Day on 17th of April. This year, the theme of World Hemophilia Day is all about diagnosis: first step to care. When our son was diagnosed with severe hemophilia A, we did all the research, connected with doctors for professional help, and guardians who has patients with […]
Anne-Louise Cruickshank
Anne-Louise Cruickshank’s story as part of the World Hemophilia Day 2026 video series: In our country, the first point of contact is often the primary healthcare nurse, followed by referral for laboratory testing. However, because the health system carries a higher burden of communicable diseases, awareness of rare conditions such as hemophilia are limited. Socioeconomic […]
Mahadeva Nanjappa
Best wishes to all dear ones I’m Mahadeva Nanjappa from Mysore chapter, Karnataka, India having sweet bleeding disorder called severe Hemophilia-A. I’m only one son to my parents born behind six elder sisters. My parents were uneducated they doesn’t know that what is Hemophilia? At that time even many doctors were don’t know about the […]
किशोर राम
मेरा नाम किशोर राम है। मैं भारत के एक ग्रामीण क्षेत्र राजस्थान के एक गाँव में पैदा हुआ और बड़ा हुआ। हीमोफिलिया ए से पिड़ित छोटी-सी चोट से भी बिना रुके खून बहने लगता है। लेकिन बचपन में मुझे इसकी सही पहचान भी नहीं थी।गाँव के सरकारी अस्पताल में डॉक्टरों ने कभी नाम तक नहीं […]
Arshad
I am a person living with hemophilia and very low Von Willebrand factor level. Living in a small town in Pakistan, I face serious challenges in accessing proper diagnosis and care. For a long time, my condition was not properly managed. I have experienced repeated bleeding episodes and severe anemia, with hemoglobin dropping to very […]
Syed Shabistan
Mr. Syed Shabistan is a community leader and advocate for people living with bleeding disorders in KP, Pakistan. His journey began with hardship up to the age of 20 years, as after years of inadequate and unsafe treatment, he self diagnosed with severe Hemophilia – A. During a time when structured hemophilia care was scarce […]