English 
Luis Alberto Zito
Nací en la ciudad de Quilmes Bs As Argentina el año 1964. Al año mi Madre observo los codos hinchados por apoyarme en la sillita de bebe. Ahí comenzó mi historia, en principio un medico hematólogo local le sacaba sangre total a mi Padre y me la transfería. Hasta que descubrieron La Academia Nacional de […]
Tianshuai
Hello everyone, my name is Tianshuai Liu, I am 29 years old. I come from China. I am a patient with severe Hemophilia A. Since I was born, I have experienced bruising, bleeding gums, nosebleed, and joint bleeding. My family was very worried about my health, but after visiting many hospitals and undergoing tests, […]
Mehak Amir
My name is Mehak Amir. I have already shared parts of my journey from my childhood and the challenges I faced, including the incident with my foot in a bike tire. Through my stories, I want to give a message to others who are going through similar conditions. Never lose hope and never give […]
Sawera Gull
My Journey of Resilience My name is Sawera Gull. At eighteen, while most of my peers are simply focused on their studies, I am navigating a life defined by extraordinary challenges and an unbreakable will. As a second-year student in Pakistan, I belong to a hardworking middle-class family where every day is a lesson in […]
Adam Trojanczyk
I was born with severe hemophilia B in Poland, at a time when factor IX concentrates were not yet available in the country. They came relatively late compared to Western Europe. For most children with hemophilia B born in Poland back then, childhood meant the same thing it meant for me: hospitals, rehabilitation, and home […]
Gloria Ramos
Gloria Ramos’s story as part of the World Hemophilia Day 2026 video series: ENGLISH Hello, I’m Gloria Ramos, a clinical bacteriologist specializing in hemostasis. A diagnosis is much more than a result on a piece of paper, it’s the door that opens the path to care, to treatment, and to hope. Reaching a diagnosis of […]
Mehak Amir
My family has always supported me in my journey. When I was in third grade, my foot got stuck in a bike tire. It was very painful, and I had to face many difficulties at that time. After that incident, the bleeding continued for almost two months. It was a very challenging period for me, […]
Mehak Amir
My name is Mehak Amir, and I am 21 years old. I am a patient of von Wille brand disease type 3 with factor VIII deficiency. I was diagnosed in my childhood when I faced many health problems, especially frequent nosebleeds. I still remember one incident when I fell at home, and my nose started […]
Nimra pervez
Nimra Pervez here, sharing my story 💪. Growing up with von Willebrand disease wasn’t easy, but it was all I knew. My two sisters had it too . One of them is no longer with us, and that loss still hurts 😔. But I’m here, and I’m sharing this to honor her memory. Diagnosed from […]
Muhiba Amir
“Some stories are not written with ink, but with pain, strength, and survival.” My life with VWD Type 3 has never been easy. It is a journey filled with challenges that most people don’t even know exist. While others worry about ordinary things, I have spent years fighting battles inside my own body. From a […]