English 
daeeun oh
Living with hemophilia has never been easy. When I was young, I had to be careful even with small injuries, and I often felt anxious about the future. At times, it felt uncertain and overwhelming. Now, at 36, I have a stable job, a loving spouse, and two children. I am living a happy and […]
Mohamed alfarse
My name is Mohammed, I’m 33 years old and I have hemophilia. I love horseback riding, and today my hand was a little tired due to a stiff elbow injury. I’m used to it, though, it’s okay. I’ll tell you a secret: they tell me to stop when I’m galloping, but I can’t. The love […]
MOUDEN Mohammed
This is my story of hemophilia, which transformed a challenge into an achievement. “My blood was never heavier than my will.” “From bleeding to giving back, my hemophilia story wasn’t the end of the road.” The beginning: A challenge called illness. I was born with hemophilia, where every bleed meant pain and a hospital stay, […]
H a i d e r
B U T T E R F L Y I love to travel, chase adventures, and lose myself in music. For me, life is about exploring new places and living every moment fully. But on World Hemophilia Day, I’m reminded that not everyone gets to take risks so freely. People living with Hemophilia often have […]
Tatjana Markovic
Tatjana Markovic ’s story as part of the World Hemophilia Day 2026 video series: My name is Tanya. I’m a mother of four and my older son has to be a hemophilia A about diagnose. We don’t have family history and we find out that the baby’s six months old with big, big bruise is […]
Fathimath
The price of a breath In a beautiful coral island of Maldives, the first sign wasn’t a crisis, but a pattern. At six months old, as Ehan began to move and crawl, his skin told a story his parents couldn’t yet read—deep bruises appearing on pressure points that shouldn’t have been there. It took three […]
Wissem Sammoud
🌍 My Story – Living with Hemophilia My name is Wissem, I’m 29 years old, from Tunisia 🇹🇳, and I am living with Hemophilia. But if you think this condition defines me… you’re wrong. I hold a Master’s degree in Public International Law. I am a trainer, a leader in civil society, and an advocate […]
Prof. Dr. Md. Salahuddin Shah
As a hematologist and Director of HTC – LOF, I would like to share my journey. I established Lab One Foundation in 2002 with the aim of providing treatment for patients with blood disorders. To ensure proper care for individuals with hemophilia, I later launched a Hemophilia Treatment Center – HTC LOF. Since then, I […]
Marión Michel Naguzia
Marión Michel Naguzia’s story as part of the World Hemophilia Day 2026 video series: Soy la licenciada Marión Michel Naguzia, profesional del laboratorio clínico en el centro de hemofilia en Caracas, Venezuela. Diagnosticar un trastorno de sangrado no es una tarea fácil para nadie. Requiere técnicas que son complejas, que son exigentes, una infraestructura especializada […]
Dr. Tahani Ali
Accurate diagnosis is very important for any disease, but it is especially important for bleeding disorders because symptoms can be similar despite different causes. Diagnosis relies mainly on laboratory testing, which requires specific equipment, reagents, and qualified personnel. In our country, we face challenges with diagnostic capacity for bleeding disorders in many hospitals. This is […]