Archives: Stories new

Yujie

Speaking Up for China’s Women with Hemophilia: My Story and Theirs As the daughter of a man with hemophilia, a woman with mild hemophilia myself, and a former sufferer of heavy menstrual bleeding, I cannot remain silent after discovering the vast gap in awareness and care for women with hemophilia in China. For 18 years, […]

MD MOMINUL HOQUE

MD MOMINUL HOQUE Founder, Disabled Rehabilitation Foundation (DRF), Dhaka, Bangladesh Executive Director, Uttara General Hospital Ltd., Uttara, Dhaka, Bangladesh Chairman, Mayer Hasi General Hospital, Ashulia, Dhaka   At the Disabled Rehabilitation Foundation (DRF), we believe that every individual, regardless of physical ability or financial condition, deserves access to quality healthcare and rehabilitation. Our journey began with […]

Siam Ahmed

Living with Hemophilia, Thriving with Hope! My name is Siam Ahmed, and 15 years old. Since birth, my life has been a little different – I was born with a rare bleeding disorder called Hemophilia-A. Even a small cut can lead to prolonged bleeding. When I fall while playing, others get up and carry on, […]

Devang

Hey! I’m Devang, 23, from India. I do freelance social media marketing, which lets me work from home on my own terms. Alongside that, I’m also preparing for government services—that’s the long-term goal.   As a kid, I was super active. But because of low Factor VIII levels, I had to deal with a lot […]

Prof. Dr. Md. Salahuddin Shah

Prof. Dr. Md. Salahuddin Shah Professor of Hematology Bangabandhu Sheikh Mujib Medical University (BSMMU), Dhaka, Bangladesh HTC, Chairman- Lab One Foundation & Director, WBDR- HTC (BSMMU) We are currently providing care and support to over 800 registered hemophilia patients through our Hemophilia Treatment Centers (HTCs) at BSMMU and Lab One Foundation. Our services include outpatient, […]

Khandakar Amirul islam

I am Khandaker Amirul Islam, Haemophilia – A patient working as a volunteer & patient counselor of HTC Lab One Foundation. My WBDR ID number is 28569, HTC Lab One Foundation, Uttara – 1230, Dhaka, Bangladesh. @Success History@ Last four months ago, suddenly I felt severe chest pain & attended at HTC LOF. I was […]

Owen Piva

My son Owen has severe Hemophilia, today my office show support and love. Team Owen!!!

Hafizur Rahman

I am Hafizur Rahman, WBDR Data Management and Patients Councilor, HTC, Lab One Foundation, Dhaka, Bangladesh. From my professional experience, I have closely observed the sincere and selfless efforts of the Honorable Sir Prof. Dr. Md. Salahuddin Shah, Chairman of Lab One Foundation, who has always stood beside hemophilia patients. He has been relentlessly working to […]

Abu Yousuf Md Nazim

“A Silent Bleed, A Silent Loss” As a Clinical Haematologist dedicated to serving patients with bleeding disorders, I often meet individuals whose lives have been shaped by unrecognized or untreated conditions. Recently, I encountered a deeply moving case that reminded me how crucial awareness and early diagnosis truly are. A young woman was admitted to […]