This is my story of hemophilia, which transformed a challenge into an achievement.
“My blood was never heavier than my will.”
“From bleeding to giving back, my hemophilia story wasn’t the end of the road.”
The beginning: A challenge called illness.
I was born with hemophilia, where every bleed meant pain and a hospital stay, and every movement brought anxiety. School was a hidden battleground of fear—not of exams, but of a minor bruise or cut. Frequent absences and the constant switching between classrooms and hospital beds made me realize early on: I could either be a prisoner of the disease or make it my driving force.
Thanks to my family’s support, and most importantly, my own personal determination, I learned how to balance regular treatment with the resolve to study. I studied while behind hospital walls, postponing my ambitions but never abandoning them.
The road to university was as big as the challenge itself.
I chose electrical engineering—specifically, electrical control—a demanding field that required focus and patience. I was dealing with complex electrical circuits while my body dealt with irregular bleeding. But I believed that a strong mind cannot be stopped by a minor injury. I persevered in my studies, striving for success amidst pain, and I set an example that illness is not an obstacle to innovation.
From university to the railway, working tirelessly to contribute to train operations with unwavering determination, my university years were not easy; the fatigue was immense, but excellence was my reward. I proved to myself first, and to everyone else second, that illness does not hinder the mind or ambition.
Today, I work for a major company implementing railway projects. I manage a small part of the operations, contributing to the operation of the railway line alongside young officials and Algerian professionals, transporting thousands of passengers. Every train that runs safely is proof that those whose bodies are limping from pain are capable of driving the wheel of development. Supporting and standing by my colleagues is always my safety net.
The establishment of the provincial association transformed individual pain into collective hope. I was not content with my personal success. I realized that there are others suffering in silence, needing awareness, treatment, and a breath of hope. I founded a provincial association to help hemophilia patients, to unite in support of the National Hemophilia Association and its members and contributions. This has made me a more mature individual, empowered to shoulder responsibilities and raise awareness. My motivations are as follows:
🔴 Providing information about treatment and prevention.
🔴 Breaking down the social stigma.
🔴 Supporting children with hemophilia in their schools.
🔴 Advocating for the provision of medications and medical supplies.
My message to every hemophilia patient:
Your illness is a part of your body; don’t let it dictate your decisions. Life won’t wait for you, but you can catch up with it with a strong will.
Hemophilia prevents my blood from clotting, but my willpower is stronger than any bleeding. If you are ill, remember that your worth lies not in the fluidity of your blood, but in the strength of your spirit. Don’t wait for a cure to begin; begin despite the illness, and you will find that life gives you more than it takes away.