Fahim Ur Rehman

My Journey with Hemophilia: Turning Challenges into Strength I am Fahim Ur Rehman, a 32years old severe hemophilia A patient (living with four hemophilia brothers) from a rural area in Pukhtunkhwa province, Pakistan. My father (79years old) is a retired senior English teacher. Despite living 365km away from Peshawar, I have learned to turn my […]

Cesar Garrido

On behalf of the World Federation of Hemophilia, I am excited to share that the theme for World Hemophilia Day 2026 is “Diagnosis: First step to care.” Right now, it is estimated that more than three-quarters of people living with hemophilia around the world remain undiagnosed. And the challenges are even greater for individuals with […]

Yujie

Speaking Up for China’s Women with Hemophilia: My Story and Theirs As the daughter of a man with hemophilia, a woman with mild hemophilia myself, and a former sufferer of heavy menstrual bleeding, I cannot remain silent after discovering the vast gap in awareness and care for women with hemophilia in China. For 18 years, […]

MD MOMINUL HOQUE

MD MOMINUL HOQUE Founder, Disabled Rehabilitation Foundation (DRF), Dhaka, Bangladesh Executive Director, Uttara General Hospital Ltd., Uttara, Dhaka, Bangladesh Chairman, Mayer Hasi General Hospital, Ashulia, Dhaka   At the Disabled Rehabilitation Foundation (DRF), we believe that every individual, regardless of physical ability or financial condition, deserves access to quality healthcare and rehabilitation. Our journey began with […]

Siam Ahmed

Living with Hemophilia, Thriving with Hope! My name is Siam Ahmed, and 15 years old. Since birth, my life has been a little different – I was born with a rare bleeding disorder called Hemophilia-A. Even a small cut can lead to prolonged bleeding. When I fall while playing, others get up and carry on, […]

Devang

Hey! I’m Devang, 23, from India. I do freelance social media marketing, which lets me work from home on my own terms. Alongside that, I’m also preparing for government services—that’s the long-term goal.   As a kid, I was super active. But because of low Factor VIII levels, I had to deal with a lot […]

Prof. Dr. Md. Salahuddin Shah

Prof. Dr. Md. Salahuddin Shah Professor of Hematology Bangabandhu Sheikh Mujib Medical University (BSMMU), Dhaka, Bangladesh HTC, Chairman- Lab One Foundation & Director, WBDR- HTC (BSMMU) We are currently providing care and support to over 800 registered hemophilia patients through our Hemophilia Treatment Centers (HTCs) at BSMMU and Lab One Foundation. Our services include outpatient, […]

Khandakar Amirul islam

I am Khandaker Amirul Islam, Haemophilia – A patient working as a volunteer & patient counselor of HTC Lab One Foundation. My WBDR ID number is 28569, HTC Lab One Foundation, Uttara – 1230, Dhaka, Bangladesh. @Success History@ Last four months ago, suddenly I felt severe chest pain & attended at HTC LOF. I was […]

Owen Piva

My son Owen has severe Hemophilia, today my office show support and love. Team Owen!!!