English 
Dr.varsha chaudhary
Hi hemophilia family,i am Dr.varsha chaudhary from India(Gujarat).i am working with meshna chepter since 6 years..i found very seviour patients with hemophilia, however with good spirits and my every steps followed by patients as i m physical therapist.I always motivated them and put my all afforts to win this situation.All time win-win situation for me […]
Libni Lizcano
¡Papa es posible que su hijo tenga Hemofilia! Con esas palabras salimos de la emergencia de una clínica privada, con mi hijo de un año y medio. Después de pasar por salas de emergencias de hospitales y clínicas sin que los doctores atinaran porque el sangrado profuso por un corte en la boca. Esa palabra […]
Efad Safi Islam
I am Efad Safi Islam, a hemophilia patient from Bangladesh and the student of class 12. I am currently working as a youth member of the “Hemophlia Society of Bangladesh”. Today I am going to share my story of being a hemophiliac. Life as a hemophiliac was never easy for me. But also, it was […]
Zita EYANG NDONG
Salut, je m’appelle Zita EYANG, suis mère de deux enfants hémophiles A sévère de 18 et 8 ans.il très difficile de vivre avec cette maladie mais on fait avec.c est la raison de notre combat au Gabon dans la création d’une association.je dirai encore plus, la sensibilisation dans notre pays, car beaucoup parmis nous ne […]
EYANG NDONG Zita
Salut, je m’appelle Zita, suis gabonaise et mère de deux enfants hémophiles de 18 et 8 ans.honnetement, c’est très difficile de vivre avec cette maladie mais on fait avec.d où notre combat au Gabon dans la création d’une association pour les hémophiles.
Maxine Stander
Hi I am Maxine Stander from Kimberley, South Africa. I am a 24 years old and I was diagnosed with Factor XIII deficiency when I was about 1 years old. I am the younger of two daughters and I am the only one that has been diagnosed with Haemophila. Although I have been aware of […]
Ashutosh sharma
An expression of thanks September 11, 1977, I (Ashutosh Sharma) was born in the capital of India, Delhi, there was a wave of greetings in my house because after five years of an elder sister a boy was born. In those days, birth of a boy was given great importance in India, his family’s dreams […]
Anto Remon Rayan
Hi, this is Remo from Pondicherry, India doing my final year B Com, suffering from hemophilia A. As a child i never cared about it until it affected my joints and i had to skip classes at my school and couldn’t participate in any sports. The factor availability was restricted in my area and i […]
RITA
hola somos de argentina , padecemos deficiencia congenita de factor VII mi pequeña y yo , Rita y Martina somos … ella usa profilaxis dos veces por semana debido a sus sangrados espontaneos , presento hemartosis en su rodilla izquierda repetitivamente y diferentes sangrados desde que esta en profilaxis su vida mejoro bastante, adaptamos todo […]
Katherinne Jurgensen
Soy portadora y madre de un niño con hemofilia a severa y autismo y albinismo a él cual de dieron un pronóstico de vida muy corto por ser venezolanos y con su múltiple patologías y por yo averlo dado a luz con 14 años y fuy madre soltera el hecho de que mi hijo naciera […]