English 
lakshmi pavani
Hi, I am lakshmi pavani (B.Com., LLM) now working as Court Master/Personal Secretary to Hon’ble Judges in High Court of Judicature, Hyderabad. I am from a city in Andhra Pradesh called Rajahmundry and my father is a teacher of aided school. I was born in 1978 and at the age of 10 years i.e. in […]
Brittany Zellner
I come from a family with bleeding disorders so it did not take me long to be diagnosed with vWD type IIA at Children’s Hospital. Since I was 10, I had been a part of the Bleeding Disorder community having gone to Camp Bold Eagle in Michigan, a part of NHF’s National Leadership Institute, and […]
Debra Margolin
My name is Debra and I was born with type III Von Willebrand’s disease. I have 0% with not more than 3% Factor 8. I am currently 54 years . When I was born the only thing that was available to me was plasma. In the 70s cryoprecipitate became available and it was only when […]
chandan Kumar
My name is chandan Kumar , suffering from severe Hemophilia a with positive inhibitor .I was born in a lower middle class family in a most undeveloped state of India. Hemophilia is unknown to all of my family . Whenever I got extenal bleed in childhood ,my parent went to a local medical practitioner ,they […]
Anupama Pattiyeri
Hi,I am Anupama.I am a dentist. Hemophilia runs in my family.My only brother,Athul, has severe deficiency of Factor VIII. My maternal uncle was Hemophilic too. I had symptoms all these years but found out that I have only 25% of Factor VIII this December, at the age of 32. I have always had symptoms of […]
Kimberly Randell
At the age of 35 after having my second child I was diagnosed mild hemophilia with factor levels of 26 % and VWD mild. My son was diagnosed at 6 months old with hemophilia A moderate 3%. Then the genetic testing began, I was confirmed a carrier and so was my mother. There are no […]
Alexandra Robledo
Mi nombre es Alexandra Robledo Riaga, soy docente, pedagoga musical para ser más exactos, tengo 43 años, mi papá, Álvaro Robledo Riaga, fue el fundador de la Liga Colombiana de Hemofílicos junto con mi mamá, Maritza Riaga de Robledo. Al ser hija de hemofílico soy portadora obligada de hemofilia. Eso lo supe desde muy niña; […]
Kirstin Dryer
I’m a 33 year old female and I have mild hemophilia with levels at 14-18%. I was diagnosed at 10 years old. I fought for many years to stop being called a symptomatic carrier to ensure proper and equal care. I am now on prophy and it changed my life. It opened my eyes to […]
Nabila Husseni
For many people with bleeding disorders, pain is a part of daily life. More than an uncomfortable annoyance, pain can affect every aspect of daily life—the ability to work a full day, attend school or engage in routine activities. Pain can limit physical abilities and dramatically affect relationships. Every person with a bleeding disorder deals […]
Huda Ali
My name is Huda Ali and im a mother of a seven months old baby girl, my daughter is a ‘crystal baby’ for she is suffering from a rare kind of deficiency. Yes she is diagnosed with Factor A deficiency which happens to 1 in a billion children. She came into my arms in Pakistan […]