Hi, I am lakshmi pavani (B.Com., LLM) now working as Court Master/Personal Secretary to Hon’ble Judges in High Court of Judicature, Hyderabad. I am from a city in Andhra Pradesh called Rajahmundry and my father is a teacher of aided school. I was born in 1978 and at the age of 10 years i.e. in the year 1987 when my father gave me disprin tablet for headache, nose bleed occurred without any injury continuously for two days; local children doctor examined and advised to go to Vellore for tests but as my uncle is in Delhi we went there for tests as it was cheap too. I was diagnosed at AIMS that I am suffering with Factor VIII-Y (VON WILLIBRAND DISEASE) by Dr.Dinesh Jain. My parents shocked of hearing that I am a VWD patient; as I am the first person in my family and after research we found that at forefathers this problem is there, but from last four decades I am the only female sufferer in my family and of course I am happy for this except me no one is leading this painful life in my family. After puberty at the age of 12, actual problem started with severe and prolonged menstrual bleed, but there was no proper guidance and treatment. I think, still there is no specific treatment for this menstrual problem.
My father want to be independent; I have to earn for myself, I have learnt the art of shorthand i.e. I can writ 180 words per minute; after graduation, I got the job as Stenographer in the year 1999. In the year 2000, my left ovary was got ruptured and bursted and in emergency I was brought to NIMS, Hyderabad and was operated. In the year 2003, I got promotion as Court Master and was shifted to Hyderabad and I am proud to say that I worked as Personal Secretary to Justice G.Rohini, who was elevated from Hyderabad as Chief Justice of Delhi Court as first women Chief Justice. After 5 fivers, in the year 2005, again my right ovary was ruptured and in emergency, operated hysterectomy at the age of 27. After hysterectomy, I got married to my childhood friend P.B.S.Prasad now he is also working in Judiciary and we have adopted a girl child.
I was suffered almost all bleeds i.e. nose bleed, abdominal pains with bleed in ovaries, psuos bleeds etc., and now suffering with target joint in my left elbow and under propholaxis from last two years; still continuing. At the age of 37 I was victim of diabetic and now hypertension too.
With the help of my parents and my husband, I crossed all the hurdles and still fighting with all pain and suffering. I am a member of Heamophilia Society, Hyderabad Chapter since 2000, but not much active as I am unable to manage all.
In my opinion for the problem of girls gynecologists role is equally important as of hematologists and still require more awareness among the gynecologists as factor will not help in menstrual bleeds.
Be bold and strong girls as the problem is manageable, be aware of the new medicines and the methods to manage the problem. All the best.
Thank you for sparing your valuable time for reading my story.