Kimberly Randell

Kimberly Randell

Canada

At the age of 35 after having my second child I was diagnosed mild hemophilia with factor levels of 26 % and VWD mild. My son was diagnosed at 6 months old with hemophilia A moderate 3%. Then the genetic testing began, I was confirmed a carrier and so was my mother. There are no other hemophilia carriers in my family that we are aware of. I had bleeding complications previously but were never of concern by my doctors. During my pregnancy with my second child who has hemophilia A I started having nose bleeds,and my body changed in some way or maybe I now became aware of some complications I had with bleeding in the past. I now have had various complications from minor procedures that required treatment to control my bleeding and anemia. Presently l only take treatment as needed or proactively if having elective surgery or procedure that may cause bleeding. I do respond to ddvap and cyklokapron and are used from time to time. I have had to have various iron IV replacement treatment as my iron stores were 11% after a bleed from a clomplication after a routine colonoscopy.I also suffer daily in chronic mayopascial pain. I am not sure if this pain is a result of my hemophilia or another genetic disorder. Getting answers is not always easy as a women with a bleeding disorder. I would love to get into a study to get further testing to see if my daily chronic pain is related to my hemophilia or another genetic disorder. I continue to try to educate myself to get the best care available. Please advise if there are studies open that may be of help in any way. Also I often wonder do other mild hemophilia carries suffer in daily chronic pain. Thank you all in advance for sharing your stories.

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Kimberly Randell

Canada

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