Rajesh Neelayya

The Haemophilia Association of Mauritius wish you all a Happy World Haemophilia Day 2023. Access for all. Cheers to all our Heroes.  Rajesh Neelayya President Haemophilia Association of Mauritius.   

Dr Subhash Chandra Jha

As hemophilia  caregiver , many positive  stories  are with me, but most exciting  ones are  : life of one child with brain Hemorrhage  is saved  with continuous  and untiring  efforts   of his mother and now that child has normal actovity without any residual disabilty , it is really  most satisfying event in my life as […]

Hazri Aris

Growing up was challenging, as I had to constantly worry about when my next bleed is going to occur. Being placed on on-demand treatment regime means, I had to experience bleed first before I receive factor infusion, and as a person with severe Hemophilia A, I was never short of 1 bleed in a week […]

Francisco

Hi there! My name is Francisco Antonio Calderón, and I want to share my story with you. At the age of 5, my life took an unexpected turn. While playing with my older brother, I had an accident that changed my life forever. I was diagnosed with hemophilia, a condition that affects blood clotting. At […]

Rana Asad Ali

My name is Rana Asad Ali, I am 19 years old and I have spent 19 years of my life with many difficulties. Once I got injured there was a lot of bleeding and at that time I did not know about hemophilia Then in 2016 my left arm bone was broken two operations were […]

Tayla Peabody

I have inherited Factor V Leidon from my paternal line; my father has Factor V Leidon and activated Protein C deficiency, which he inherited from his father, which he inherited from his mother. All of whom suffered DVT’s at one point in their lives. As a teenager, when my father had a DVT, I went […]

Midhat Khalid

“Hope is being able to see that there is light despite all of the darkness.”    Life is not a bed of roses, it is a journey where one has to pass every dark, shiny, rough, and tough path. It depends on an individual how one goes through this journey. Here begins my journey to […]

Haider Ali Shah

“No matter how long the night is, the morning is sure to come” I don’t know how to right a story but I will share my short story in my own words. In my point of view hemophilia is the same life with extra hard struggle, which gives you extra skills, extra strength and extra […]

David Sikanga

MY PASSION FOR HEMOPHILIA One and a half decades ago, my son was born (now 16yr old, a high school student). He grew up like any other boy in good health until when he sustained an injury to his upper gum while chewing sugar cane. It was a horrible experience before my son could recover […]

Geoffrey Mosongoh

My name is Mosongoh, a Kenyan man aged 43 yrs. I have hemophilia. I was diagnosed when I was 3 years old, and ever since then, it’s been a constant presence in my life. Hemophilia is a genetic disorder that affects the blood’s ability to clot properly, which means that even a small cut can […]