Growing up was challenging, as I had to constantly worry about when my next bleed is going to occur. Being placed on on-demand treatment regime means, I had to experience bleed first before I receive factor infusion, and as a person with severe Hemophilia A, I was never short of 1 bleed in a week during my childhood.
Thanks to the advancement of treatment and care in Malaysia, I benefited from prophylaxis treatment from age 22 onwards which significantly reduced my bleeding episodes, and now I am able to lead a healthy and an active lifestyle.
I hope and pray (and will be working hard too!) that more PwBDs will be able to enjoy the best possible treatment and care towards better control and prevention of bleeds.
Happy World Hemophilia Day!