English 
Cesar Garrido
On behalf of the World Federation of Hemophilia, I am excited to share with you that the theme for World Hemophilia Day 2025 is “Access for all: Women and girls bleed too.” Recognizing women and girls with bleeding disorders marks a major milestone in our community. These individuals are unfortunately disproportionately underdiagnosed and underserved. It’s […]
Imtiaj Muhammad Abu Ahsan
Sometimes the stories of life seem like the stories of books, my story was like that, it can also be called the story of getting life back. It was mid-year 2014 when I first needed surgery for gallbladder stone removal through laparoscopy in Chattogram, Bangladesh in a private Hospital. The operation was successful but the […]
Cindy Ann Nogueras Jones
I found this page while searching about my hemophilia diagnosis. My Name is Cindy Nogueras, 28, from Puerto Rico. Back in July 2023, while I was unknowing fighting for my life was diagnosed with Hemophilia factor XII also known as HAF deficiency, Hageman factor deficiency, Hageman trait. Factor XII deficiency is a rare genetic blood […]
Verónica Vázquez medrano
Yo bien agradecida con la lic.laura Paez y la doc.laura villareal de la clínica de hemofilia del hospital universitario.ya once años que mi hijo es atendido ahí ,es una excelente atención con su gran equipo multidiciplinario,nos han enseñado tantas cosas ,de como debemos llevar una buena profilaxis y poder nosotras mismas infundir a nuestros hijos.gracias […]
Eliza VanZweden
My name is Eliza VanZweden, and I am writing to share my journey as a woman living with Glanzmann’s Thrombasthenia. GT is a rare bleeding disorder caused by a platelet defect in which platelets do not aggregate to stop bleeding. I was diagnosed shortly after birth in 1999, due to symptoms of birth trauma. My […]
Alice Ho Man Ling
I have a child, named Aaron, who was diagnosed with Hemophilia A Severe, when he turned 1 year old in year 2010. He had an episode of intracranial hemorrhage at the age of 2, which almost cost his lives and along the way, had many joint bleeds episodes. At that moment in time, all the […]
Patricia Naranjo ayala
Hola mi nombre es Patricia naranjo y soy mamá de Diego Blankevoort de 7 años quien tiene Hemofilia A severa soy portadora de hemofilia mi padre tenía hemofilia y cuando nació mi hijo nunca imaginé que el podría tener y así fue desde un año que Diego usa la profilaxis el se inyecta hoy en […]
Sarah Richardson
I am a mom of four beautiful children, with one having moderate Hemophilia A (however, he bleeds as a severe). He is my second youngest and most defiantly the most wild out of my bunch. From 7.5 years ago, when we found out Elias has hemophilia shortly after birth, life has has it challenges but […]
Phyo Khant Kyaw
Dear All, My name is Phyo Khant Kyaw, and I am writing to share my journey as a severe Hemophiliac with Factor-IX deficiency from Myanmar. In 1998, I was faced with the harsh reality of my condition when a simple injury to my gum led to a diagnosis that changed my life forever. At that […]
Lucia D. Rocha
Terapeuta Hemato-Onco formada para peques con Hemofilia sin conocer que la vida me preparaba para atender a mi propia familia. Oaxaca-México