Umar Khattak

Bleeding Disorders in Pakistan: A Struggle for Treatment and Hope Pakistan’s healthcare system has long overlooked patients with bleeding disorders (PwBDs), leaving them without access to essential treatment. For years, individuals suffering from conditions like hemophilia, von Willebrand disease, rare factors deficiencies etc faced life-threatening complications due to the unavailability of Clotting Factors Concentrates (CFCs) […]
Maximiliano anarelli de Souza

Una frase que para mí es muy común es “desafiar lo imposible!” Hola saludos hemofílicos. Yo soy de Brasil. Todavía estoy aquí. Cuando tenía 2 años, el médico le dijo a mi padre que sólo viviría otros 6 meses. Antes de eso me había caído y me había cortado, y como ni siquiera los médicos […]
Rimsha Imran

I am a vwd type 3 patient and i am studying in university. I diagnosed vwd at the age of 7 and i think this disease is a strength for me to move in my life
ATHARV PAREEK

My name is Atharv Pareek 9 years old, I have Severe hemophilia A type disease, due to this disease I am not able to go to school properly nor play with friends, I have to go to the hospital 4 days a week to take the factor VIII Prohylaxis treatment. By taking the reason of […]
Marlene Beijevelt

Discover Marlene’s story as part of the World Hemophilia Day 2025 video series: Hi, I am Marlene Beijevelt and I’m working in the hemophilia treatment centre in Amsterdam, The Netherlands. I think that women and girls with bleeding disorders deserve better care and more understanding and at least faster diagnosis. In our treatment centre we’re […]
Tatiana Bathfield

Discover Tatiana’s story as part of the World Hemophilia Day 2025 video series: 17 years ago, I gave birth to a baby girl suffering from severe factor 7 deficiency. From the moment our daughter was diagnosed, our lives changed dramatically. With little to no information about this very rare bleeding disorder, we started navigating a […]
Anupama Pattiye

Discover Anupama’s story as part of the World Hemophilia Day 2025 video series: Hello, this is Anupama, a member of the girls and women with inherited bleeding disorders committee of WFH. I’m from India and I have a mild deficiency of factor VIII. But I got my diagnosis only in my 30s. It’s very, very […]
Yannick Collé

Discover Yannick’s story as part of the World Hemophilia Day 2025 video series: Hello, my name is Yannick, I’m 61 and now I know that I’m living with mild hemophilia A. I will speak about my journey for recognition. Years of wondering; I lived for years with symptoms, bruises, bleeding after tooth extraction, every menstrual […]
Eliza VanZweden

Discover Eliza’s story as part of the World Hemophilia Day 2025 video series: Hi, my name is Eliza. I live with Glanzmann thrombasthenia, a rare platelet disorder. Even though I was diagnosed from a young age, I have constant severe bleeds which means trips to the emergency room for a platelet transfusion which is my […]
Dawn Rotellini

Here’s a message from Dawn as part of the World Hemophilia Day 2025 video series: Hi, it’s Dawn Rotellini with the World Federation of Hemophilia. I am the chair of the International Women and Girls with Bleeding Disorders Committee. The reason I think this is so, so important to use World Hemophilia Day as a […]