English 
Haider Ali Shah
“Strengths with Deficiency” I’m not writing about my so called Royal Disease clotting factor😁, it’s about those moments which are almost deficit from my life, maybe it’s the feeling of majority persons with bleeding disorders. Your childhood will be ruined by your pressurized limited life, your special events like Eid, Christmas and Diwali or even […]
Leddah Ira Agustin
Today is World Hemophilia Day It has been 3 years since my son was diagnosed with severe hemophilia A. The past years were very challenging for us. Knowing that our country have limited knowledge to rare bleeding disorders, it is also hard for us to look for medical practitioners who knows how to infuse for […]
Desh Deepak Sharma
A Journey with Hemophilia B. I would like to Introduce myself as Desh Deepak Sharma From Rupaspur Distt. Firozabad Uttar Pradesh (India) & Share my journey of life with Haemophilia. My D.O.B is 21 September 1996.Currently,I am registered at Agra Chapter (Hemophilia Society Agra) . I belong to a Middle class Family. My father […]
Mahadeva Nanjappa
Dear ones Myself Mahadeva Nanjappa PWH with Factor-VIII. From Mysore chapter. I suffered a lots of pain from bleeding, swelling, in my childhood & througout my life. My strength is only my Mother he took very much care about me. In 1999 i got married to kind hearted girl. My luck, She became the second […]
Rimsha imran
My name is Rimsha Imran, and I have completed my Bachelor’s degree in Statistics. I am a patient of von Willebrand Disease (VWD) Type 3. I was diagnosed at the age of 7. My younger brother is also a patient of VWD Type 3, and he was diagnosed due to excessive bleeding after circumcision. In […]
Md Tanvir Hossain Majumder
From Bleeding Knees to Changing Lives: My Journey as a Hemophiliac Humanitarian. I still remember the first time I realized I wasn’t like other kids. At six years old, while my friends played cricket and other sports in the dusty streets of Chattogram, I had to sit on the sidelines. A simple fall would leave […]
Mohamad Abdulkader Lababidi
My Name is Mohamad Abdulkader Lababidi. I was born and raised in Aleppo, Syria—a city once celebrated for its ancient citadels and bustling markets, now scarred by war. My life has been a relentless dance between two forces: “hemophilia”, a genetic disorder I inherited, and the chaos of a conflict that turned streets into battlegrounds. […]
Muhiba Amir
My name is Muhiba Amir. I’m 18 years old. I’m a patient of VWD type lll .I am student of FSc Pre medical in Punjab group of colleges. I diagnosed with VWD when I was 6 month old and I had my severe nose bleeding. Also my father and sister have this disease so they […]
Lilli
Hi, I would like to share my story anonoumisly, since I fear negative consequences by telling it. I am a young woman and I was diagnosed when I got my period with mild vWD type I and a thrombocytopathy. My doctor at that time was amazing. My first treatment didn’t work out fine, so I […]
Midhat Khalid
The Girl Who Bled Hope Life is no bed of roses; it is a profound journey marked by shadows and light, by trials and triumphs. Each path—whether smooth or stormy—shapes us in ways words often fail to express. Ultimately, it’s our own strength, choices, and resilience that determine how we walk this road. And so, […]