English 
Ben Maoga
I am Ben Maoga Mosongo,34 years old, a Kenyan who has moderate Hemophilia A. Professionally am an electronic mechanical. I was elected to serve as the executive board member of the Kenya Hemophilia Association (KHA) where I represented patients with needs. To me, Hemophilia is life-threatening with all I have experienced. I have gone through […]
David Yator
Today, allow me to go down memory lane and narrate about a condition that changed the trajectory of my life as a father- a caregiver. I had been uninformed about Hemophilia until 2009 when I set foot at the doors of Kenyatta National Hospital where I got enlightened on Hemophilia. This was the day that […]
Dennis Rutto
My name is Dennis Rutto, I have severe hemophilia A. I was diagnosed with the condition in the year 2012 after I had undergone circumcision. Early diagnosis was missed due to a lack of knowledge among my parents and the community at large. Having the kind of health issues I had was considered a curse, […]
Masood Fareed Malik
“Being a hemophilic is just a matter of adopting a diverse lifestyle that is more protective and safe” Growing up in a developing country with Hemophilia meant more than discomfort, pain, and disability to me. I remember the times spent lonely at home, away from friends. At times, friends were reluctant to include me in […]
Natalia
Здравствуйте, уважаемые сотрудники WFH! Узнав о том, что скоро будет Всемирный день гемофилии, решила написать вам благодарственное письмо. Вот уже более 50 лет вы сосредоточены на […]
Mitch Semienchuk
Hello all, As the editor of the WFH News page, I’m always covering the latest news in hemophilia, and sharing the latest developments for people with bleeding disorders. It’s a rewarding job, but the most interesting day of the year for me is World Hemophilia Day, because that’s when I get to read heartfelt stories […]
Parimal Chandra Debnath
I am a severe hemophiliac with factor-VIII deficiency. I am from a remote island district of Bangladesh. I passed my early life without any treatment but to use ice available in fishing village near our village home. Yes I had a very critical life during my school life still I was able to complete my […]
Charity Pikiti
Celebrating World Haemophilia Day 2022 If you have not seen or heard of heroine’s, here is one that inspires my work. Ba Egrain Ngandu from Kasamba village, Chief Hanjalika, Mazabuka District, Southern Province. The woman you see in the two picture with her husband gave birth to 18 children of which 9 died […]
Abhishek Haryani
I have Severe Hemophilia A and have suffered from many complications from it. The continued support of organizations that help people suffering from this debilitating disease and all the help from supporting friends, family and colleagues has allowed me to live a relatively great life. Hoping the best for everyone who is suffering from Hemophilia. […]
DEBASHIS GHOSH
I am a patient with HEMOPHILIA, I was diagnosed at the age of 10 months. Later I was found Sero Positive in 1996. I was the first patient of The Haemophilia Society Calcutta Chapter who started Anti Retroviral Therapy. This year my DIALYSIS HAS STARTED SINCE JANUARY 2022 as my kidney stopped to work. Again […]