English 
Rietha Brun
I have always been covered with ugly bruises. Always thought is was normal, until I had my first periods. They lasted sometimes up to 2 weeks and were very bad. I would have to leave the classroom every 20 Minutes to get changed etc. My family never seemed worried about that. After the birth of […]
Anne Giroux
Hello, my name is Anne and I have Von Willebrand Disease. Disease type 1 to be exact. One of my largest complaints about growing up with a bleeding disorder, isn’t missing out on things in gym class, spending hours icing joint bleeds or even the pain that comes with them, it’s how misinformed people are. […]
RAYNIER TARAZONA
mi historia es muy sencila vivo en venezuela ya hemos perdido suficiente suministro de factor y han ocasionado lesiones irreversibles. probablemente nos haran sacar un carnet de la patria para que nos puedan entregar el medicamento, la regente de la farmacia nos hace ir con hemorragias para suministrarnos el factor no importanmdole la distancia que […]
Devi Ramaswamy
I suffer from severe Factor VII (7) Deficiency, a rare bleeding disorder. Right from birth, I struggled to survive and I faced many instances where I was on the verge of death. My health condition deteriorated due to the lack of Factor VII concentrate in India. As I was growing up, my studies were affected […]
Teresa D’Ambrosio
With a little bit of luck….. In 1979, and at the age of 2 weeks, one of my fingernails bled. The pediatrician asked my parents to put pressure on it using bandages. It never stopped. A few weeks later, I suffered an intracranial bleed which led to experimental surgery. During that time, the Hemophilia Treatment […]