I suffer from severe Factor VII (7) Deficiency, a rare bleeding disorder. Right from birth, I struggled to survive and I faced many instances where I was on the verge of death. My health condition deteriorated due to the lack of Factor VII concentrate in India.

As I was growing up, my studies were affected due to multiple joint bleeding problems and severe arthritis pain. I also suffered menorrhagia or heavy and prolonged menstrual bleeding, which can be life threatening. Dealing with menstrual bleeding each month is always a dreadful experience. I have tried many different types of treatment, but to no avail, leaving me exhausted. Because of my condition, my parents became overprotective and I grew up seemingly wrapped in a bubble. That was their way of shielding me from bleeding issues.

After joining the Hemophilia Society – Salem Chapter, I found hope. I started to receive proper treatment from the Government Hospital in Salem. After 25 years, I finally felt like I got my life back. With access to treatment, I managed to finish my studies through home schooling and graduated with a Bachelor of Arts Degree in History.

I am currently an active member of my Society, and I am doing everything possible to help our chapter to grow. I also run public awareness campaigns on female bleeders, as many people, including doctors, still associate haemophilia and bleeding disorders with males only.

My parents have seen my growth and believe in me, and now allow me to explore my own independence. I hope that in future, proper treatment will be readily available everywhere at no cost for all haemophiliacs.