English 
Molline Odwar
My name is Moline and I live with my family in Nairobi, Kenya. I am an Ambassador for MyGirlsBlood. Nairobi is a very beautiful city with tall buildings including Kenya’s Presidential and Parliament offices. Tourists like the city of Mombasa better, because it is by the Indian Ocean; the port city of Kisumu is on […]
Angel Parrett
I am a woman with a rare bleeding disorder (severe factor 1 deficiency). Blessed to be diagnosed at birth, but faced with limited treatment options for most of my life. Until 2014, all I had was cryoprecipitate. In 1998, as a result of the contaminated blood crisis that affected individuals with hemophilia world wide, I […]
Stormy Johnson
I wasn’t diagnosed with Hemophilia until I was 46 years old despite having a son and several family members diagnosed. I grew up thinking heavy menstrual bleeding was normal, suffering sometimes for 30-45 days at a time. My story includes 4 miscarriages, blood transfusion, bruises and lots of joint swelling/pain. In my family we just […]
INDIRA NAIR
My experience as a mother of PWH It was a joyous moment when the nurse brought to me my second baby boy in Jan 1985. We were enjoying my son Vinay’s crawling period and I started noticing bruises on his ankle joints. When the doctor revealed that he is suffering from Hemophilia, I knew nothing […]
Kelly Sarabia
My granddaughter, Mila Joan Tohill, is four years old and has Von Willebrand type 1. She was diagnosed at one years old after having a dental procedure done. I want her to grow up to be a very strong young lady to not let her bleeding disorder get the best of her. I will continue […]
Melissa Duff
Hello I am Melissa. I am 32 years old. I found out I had a bleeding problem at the age of 12 when I would not stop hemorrhaging. It took 2 years for them to find out that I have a very rare Quantitative Platelet Disorder with a Prostaglanden Defect. I still have never met […]
Stephanie Streur
I am carrier of Hemophilia A. Lot of problems with periods and when I need an operation. Growed up with the disorder because I got it from my dad. My dad is a very positive man en never showed that he had problems with the disorder. On the time when me and my partner started […]
Nataraj Bodhi
HI, I’m Nataraj, 28 years young male from India. I’m a person with severe Hemophilia A. Though I was showing symptoms since 3 months young baby, I was diagnosed only at the age of 6 (Fortunate enough I believe, lots of people are not diagnosed even till the age of 50+ years in their life, […]
Pauline De Bolle
Bonjour je suis maman d’un petit garcon atteint d’hemophilie A sévère. Maladie que je ne connaissais pas avant qu’on le diagnostique à l’âge de un an. Durant sa première année de vie je savais que mon fils avait quelque chose car il attrapait facilement des bleus avec une boule. J’en ai parlé plusieurs fois aux […]
Megan Adediran
I am a mother of 2 boys with severe Haemophilia A. Coming from a lineage of 3 carriers, I still was surprised when my first son was born because my great grandmother, grandmother and mother were never diagnosed. Also between them 13 sons had died. My first son had 7 blood transfusions in his first […]