English 
Alyssa
My name is Alyssa. I am the proud mom of 2 amazing little boys, Elias & Eliot- who happen to have severe Hemophilia A. They are 7 and 5 years old. My husband, Omar and I have had our eyes opened to this bleeding disorders world. Our boys are the 3rd generation with Hemophilia and […]
Yoraxsy Bencomo
GENOCIDIO CON LAS PERSONAS QUE VIVEN CON HEMOFILIA. Hola mi nombre es Yoraxsy Bencomo , madre y hermana de personas qie viven con hemofilia. En venezuela el estado no compra factor coagulante desde el año 2016, han muerto ya varias personas con hemofilia, aunado a ello ya varios hemofilicos esta haciendo sangramientos expontaneos , aunqie […]
Amy Sofía Pinell Fernández
Mi nombre es Miriam Fernández personal de la salud para ser especifica Lic.En Anestesia y Reanimación, soy mamá de una niña q tiene Von wilembrand q fue diagnosticada a los 6 meses de edad debido a los sangrados constantes de nariz y los hematomas sin motivos aparentes su diagnóstico gracias a Dios fue en el […]
Elizabeth
Tengo alrededor de 30 años padeciendo anomalias en la coagulacion de la sangre. La primera ves que me corte siendo niña sangre mucho mi madre estuvo asustada, constantemente se me hinchaban las extremidades que muchas veces me impisibilitaban caminar, realmente he tenido cuadros muy deficiles. Me habian diagnosticado hemofilia, pero ahora mismo estan descartando y […]
Jose Acosta
Yo tengo el Sindrome de Plaqueta Gris de esta condicion se conoce poco o nada y es algo parecida a la hemofilia lo unico que yo no tengo que tomar factores, el año pasado fui a unas conferencias en orlando el año pasado y no conocian mucho sobre esta condicion.
Belinda
I am a female who was diagnosed with Haemophilia A with levels of 28% at the age of 45. I have had many bleeding and bruising issues over the years. There was no previous family history of haemophilia. Since the genetic testing was done we have discovered that my Dad is also a haemophiliac.
Teresa DAmbrosio
I was born with factor V deficiency, a rare bleeding disorder. At the age of two months, I suffered an intracranial bleed which led to various problems that I have lived with throughout my life. I live with my family who help me with daily tasks. My bleeding disorder is treated using fresh frozen plasma, […]
Kamaal Hassan Adnan
I am Kamaal Hassan Adnan Born and Raised in Somalia, one of the worest places in the world to be a heamophilia. I’ve been suffering and living with hemophilia till childhood as i am the only one in my community living with this disease. I do believe that one day we will get an access […]
Harshith.R.sethiya
Hii I’m Harshith from India 18 years old boy with Hemophilia A I was diagnosed when I was 1/2 years old (2001) with gums bleeding my journey begins from there till now had ups and downs but learnt to accept the fact what I have got to know I’m not normal like others took up […]
Claire
I am the mum of a 2 years old boy who has severe haemophilia A. No family history but we know now that I am a carrier. We are lucky enough to be in that part of the world where we have access to prophylaxis every second day to prevent any bleeds. So far we […]