English 
ERIK
TENGO 4 AÑOS Y A LOS 3 AÑOS CON 7 MESES ME DIAGNOSTICARON HEMOFILIA A SEVERA.. PARA MI Y MIS PAPAS ES UN CAMBIO FUERTE, EN ESPECIAL PARA MI MIS ARTICULACIONES SE INFLAMAN.
Fathimath
I was blessed with this bundle of joy in November 2017. He was everything a mother could ask for. In June 2018 he started crawling at the age of 6 months, that was when i noticed some unusual bruises around his knees and elbows (pressure points when crawl). I did not take it too serious […]
Maryann B
I was 4 years old when I was diagnosed. My parents said I’d wake up in the middle of the night every night covered in blood due to a severe nosebleed. The doctors thought at first I had Leukemia but the results showed that it was actually Von Willebrand Disease type 1. My parents have […]
Edison Chiluiza
Saludos, Mi nombre es Edison soy PCH A, tener una condición de vida a sido un poco complicada por el tema de aceptación propia y de los demas, en algunos casos la comprensión y entendimiento de lo que tengo esto incluso en médicos, pero aun así he podido sobrellevar hasta donde estoy. A veces nos […]
Hassan Raza
Hello! Happy World Hemophilia Day! I was diagnosed at the age of 6 months after the bleeding didn’t stop after circumcision and doctors figured out that something was wrong with the coagulation cascade and it turned out they were correct! I was missing Factor VIII – completely – it just wasn’t there. Less than 1% […]
Luisa & Aleah
Meeting patients and families, hearing the numerous stories as if we were sitting around a kitchen table so many moments of inspiration, strong determination and conviction in knowing that proper care and treatment is essential to have a good quality of life. Outreach allows the community to connect and blossom. Whether it is hemophilia, VWD […]
Kedrion Biopharma
Every day – the world over – Kedrion stands by those affected by hemophilia and other coagulation disorders, also by supporting global and local initiatives aimed at increasing awareness of these conditions and access to their treatment. This World Hemophilia Day, a Kedrion delegation is in Antalya, Turkey, where the company works with Turkish medical […]
Asociación Nicaraguense de Hemofilia
The voluneer team from the Nicaraguan Hemophilia Association are stronger than ever, working together to improve the opportunities in health for People with Hemophilia. From Central America we send the best wishes and invite you to don’t give up in this fight. – El equipo de voluntarios de la Asociación Nicaragüense de Hemofilia se encuentra […]
Edwin
Hi,my name is Edwin,I am 9 years old. I have hemophilia A. My right ankle often hurts, but I swim for 8 hours a week. I hope my right foot will recover as soon as possible.
Gayane
I am in the Accounting & Finance department at the WFH. For many people numbers may seem boring and dull, but I know that behind those numbers there are hope and help for many people all around the world. I am proud to be part of this world.