Fathimath

Fathimath

MALDIVES

I was blessed with this bundle of joy in November 2017. He was everything a mother could ask for.
In June 2018 he started crawling at the age of 6 months, that was when i noticed some unusual bruises around his knees and elbows (pressure points when crawl). I did not take it too serious first, but when it he started showing recurrent bruises with swelling i decided to see a paediatrician. After series of consultations and blood examinations a blood sample of him was send abroad to check levels of his blood clotting factors/ clotting protiens for suspected muscle bleed.
Recieved the LIFE CHANGING reports in August 2018 which showed that his blood clotting factor8 level was at 1%, so was diagnosed with HEMOPHILIA A. That was first time i heard the word Hemophilia.
Hemophilia patients are very rare in Maldives. He is the 18th case recorded as per Hemphilia society of Maldives.
Since August 2018, he has been admitted in hospital 5 times to treat bleeds. The latest report of him shows that his factor level is at 0% meaning that his condition is at a severe level.
His doctor have advised to start prophylaxis (regular dose of factor injection) ASAP. However factor availability is an extreme challenge. (since its not available from pharmacies like regular medicine).

Now every day is a battle, a battle with him for his survival. #lifeofhemophilic #hemophiliaday #17042019

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Fathimath

MALDIVES

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