English 
Isabella
Isabella sandi Edad 7años Con la enfermedad de Von Willebrand
Sunil Pindoria
This is my Journey of living with Haemophilia. My Journey of living with Haemophilia
Omer Abdulmagid
When i was 11-year-old, there was great debate regarding my circumcision among the family. Elder members like my grandmother and uncles, remembering the death of my uncle due to non-stop bleeding, resulting from the circumcision as per the Muslim tradition in Sudan. My father, one of the admirers of Dr. Faroog Sidiqu, the reputed hematologist […]
Ariel Yonatan Alin
My name is Ariel Yonatan Alin, I am 27 years old. I come from Surakarta, Central Java, Indonesia. I am an individual with hemophilia A. I was detected with hemophilia when I was 6 years old, at that time I went to Sarjito Hospital Yogyakarta for treatment. My experience dealing with hemophilia is very complex, […]
Lilly Villalon
Hola, mi nombre es Lilly Villalon, soy de nacionalidad Mexicana y resido en Estados Unidos. Fui diagnosticada hace 2 años con Hemofilia A mild y VWD Type 2N, tengo un hijo de 17 años diagnosticado con Hemophilia A mild, y tengo 3 hijas que están en proceso de ADN 🧬 para checar si también tienen […]
Mateo Yaca Titichoca
Mi nombre es… Mateo naci en la ciudad de Trinidad, Beni-Bolivia, un 12 de abril del 2018, y actualmente vivo en San Ignacio de Moxos, una provincia del Beni. Mi historia comenzó en San Ignacio de Moxos, en el mes de octubre del 2018, cuando tenia 6 meses de nacido. La primera vez fue cuando […]
Novi Riandini
My name is Novi Riandini, 50 years old. I am married to Muhammad Gunarso, who has Hemophilia B since 1998. At the beginning of our marriage, I encountered many difficulties finding information about Hemophilia. There were many things I didn’t know about how to care for a husband with hemophilia with limited treatment and medication […]
Muhammad Gubarso
I am Muhammad Gunarso, a 51-year-old Hemophilia B patient. I am the first diagnosed Hemophilia B patient in Indonesia, thanks to the assistance of the late Prof Djajadiman Gatot, MD. Since Indonesia joined the World Federation of Hemophilia, many changes have occurred in our country. Treatment, care, and government support for us have gradually improved. […]
Thomas
Hola soy Thomas Ceballos, tengo 15 años de edad y actualmente estoy culminando mi bachillerato, me diagnosticaron como paciente con Hemofilia A severa cuando tenia 8 meses de edad por un sangrado en la cabeza, desde ese momento mi mamá Luz Estella me ha acompañado en todo el proceso de salud, llevo mi vida común […]
Yazan
I am Yazan from Palestine, diagnosed with Hemophilia type A shortly after my birth at the age of four months, during a circumcision procedure, where bleeding persisted for hours, prompting the doctor to conduct a clotting factors examination, revealing a deficiency in one of the blood clotting factors, diagnosing me with Hemophilia A. This was […]