Sarah Richardson
I am a mom of four beautiful children, with one having moderate Hemophilia A (however, he bleeds as a severe). He is my second youngest and most defiantly the most wild out of my bunch. From 7.5 years ago, when we found out Elias has hemophilia shortly after birth, life has has it challenges but […]
Phyo Khant Kyaw

Dear All, My name is Phyo Khant Kyaw, and I am writing to share my journey as a severe Hemophiliac with Factor-IX deficiency from Myanmar. In 1998, I was faced with the harsh reality of my condition when a simple injury to my gum led to a diagnosis that changed my life forever. At that […]
Lucia D. Rocha

Terapeuta Hemato-Onco formada para peques con Hemofilia sin conocer que la vida me preparaba para atender a mi propia familia. Oaxaca-México
Ralphy gatens
Isabella

Isabella sandi Edad 7años Con la enfermedad de Von Willebrand
Sunil Pindoria
This is my Journey of living with Haemophilia. My Journey of living with Haemophilia
Omer Abdulmagid
When i was 11-year-old, there was great debate regarding my circumcision among the family. Elder members like my grandmother and uncles, remembering the death of my uncle due to non-stop bleeding, resulting from the circumcision as per the Muslim tradition in Sudan. My father, one of the admirers of Dr. Faroog Sidiqu, the reputed hematologist […]
Ariel Yonatan Alin
My name is Ariel Yonatan Alin, I am 27 years old. I come from Surakarta, Central Java, Indonesia. I am an individual with hemophilia A. I was detected with hemophilia when I was 6 years old, at that time I went to Sarjito Hospital Yogyakarta for treatment. My experience dealing with hemophilia is very complex, […]
Lilly Villalon
Hola, mi nombre es Lilly Villalon, soy de nacionalidad Mexicana y resido en Estados Unidos. Fui diagnosticada hace 2 años con Hemofilia A mild y VWD Type 2N, tengo un hijo de 17 años diagnosticado con Hemophilia A mild, y tengo 3 hijas que están en proceso de ADN 🧬 para checar si también tienen […]
Mateo Yaca Titichoca

Mi nombre es… Mateo naci en la ciudad de Trinidad, Beni-Bolivia, un 12 de abril del 2018, y actualmente vivo en San Ignacio de Moxos, una provincia del Beni. Mi historia comenzó en San Ignacio de Moxos, en el mes de octubre del 2018, cuando tenia 6 meses de nacido. La primera vez fue cuando […]