T. Jaipal

T. Jaipal

India

JOURNEY  WITH  HEMOPHILIA

 

 

I am T. Jaipal, 73 years old ,Member and Treasurer of Hemophilia society  Pondicherry chapter. My journey remained from South to North and North to South .

I was born on 6thOctober 1950 at Chennai. My father being central government staff got transferred to Jabalpur and we got settled there. Up to 12 years of my age days passed with full of pain and treated with Home remedies.  There was a small Rt knee hit and from then onwards spontaneous bleeding occurred with a big swelling and intolerable pain. In spite of pain killer medicine taken, Rt, Knee got totally stiff and then onwards RT Knee had contracture. Then many episodes of joint and  muscle  bleed occurred, and  I started my career along with the pain and Courage given by God .

I completed my HSSC examination and joined Central  Government  as LDC Staff. From then onwards I reached up to Office Superintendent  Level -1, in Administration Division, in no time I became handicapped due to repeated joint and muscle bleed

Things were going normal and one fine morning spontaneous Gum bleeding occurred and  it took 3 to 4 days to become normal.  In the year 2004, September Intra Abdominal bleed occurred and not able to find reason and 10bottles of wholesome blood given to stop the bleeding. I again consulted with the Dr’s and again Medical checkups was done thoroughly and found that it is blood clotting disorder Hemophilia. Blood Assay was done and found F VIII < 1% which is severe. Then I got  Registered in Hemophilia society Jabalpur as a member.

In the month  of April 2006 I got Voluntary Retirement leaving 5 years service. I had an opportunity to settle in Pondicherry along with my son and my wife.  Since 2011, we settled in Pondicherry. I called Mr. A. Balaji, secretary of Hemophilia society Pondicherry chapter,and he  advised  me to contact Dr. P. Nalini, and get registered in Hemophilia society Pondicherry chapter. Then                       Dr. P.Nalini called me  over phone to come to office   immediately and she  examined all the medical records and told to get  registered  in the Pondicherry chapter. She felt very sad due to disability happened to me

From then onwards Dr. P. Nalini is fully taking care of me. She with the help JIPMER Central Government Health Scheme, received  Factor VIII for me  as regular prophylaxis. It would not be out of order to say that Prof. Dr. P. Nalini is GOD for Hemophiliacs of Pondicherry chapter providing personnel  touch  to all hemophiliacs irrespect of caste, creed and colour. This  year 2023 Prof. Dr. P. Nalini is awarded with Padma Shri by the Government of India.

I am living peaceful life with the help of Hemophilia society Pondicherry chapter,

JIPMER Doctors, Central Government Health Scheme, and along with my family support also.

Thanking you,

  1. Jaipal,73 years old, F VIII < 1%(Severe)

Treasurer and Member

Hemophilia society Pondicherry chapter

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T. Jaipal

India

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