English 
Mary Haugen
It is a challenge. Two generations of women before me, then me, then two generations after me have hemophilia B and severe bleeding histories. I now strugfle to get a perscription for factor. By the time I am seriously bleeding, the doctors watch and if lucky, I will get blood products. I have great concern […]
Anonymous Anonymous
Hi, I am a 27 year old woman with a fierce determination to live and make the most of life. But my body fails me daily. I have Ehlers Danlos Syndrome (EDS) which effects my heart, joints, gut and other things. I have very hypermobile joints and lots of joint pain and bleeds. When I […]
Tammy Davenport Treat
My name is Tammy Davenport Treat and I have hemophilia A. I was diagnosed when I was 5 years old. My father also had hemophilia and my 22 year old son does also. As an adult, I realized I had joint bleeds growing up that I didn’t know I was having. Now I have extensive […]
Cheryl D’Ambrosio
Between 2014 and 2016, I spent a total of six months traveling throughout India as a volunteer project manager for the Hemophilia Federation of India (HFI). It was an honor to participate in the first year of development of a newly forming Women’s Group. A little background: At the 2012 WFH World Congress in Paris, […]
Fatima sheidaei
Fatima: In patriarchal communities where the man is the first family member and the women always comes second, deficiency and illness in women is counted as a crime, a sin. You’re always under the gaze of your husband and his parents. My name is Fatima,l am from Iran, I am a carrier of Haemophilia. I […]
vijay koravi
Hemophilia..! I hadn’t heard this name before year ago, when my health condition was too worst, then I got know I was Hemophilia person.when i was kid i used to play all outdoor games, i had so many injuries.whenever I get injured, I bleed spontaneously. docter’s also didn’t tell about this, cause they were also […]
Ana Almendares
Hola, mi nombre es Ana Almendares, en mi familia la hemofilia facto Vlll severa es hereditaria y la vida me ha preparado desde mi infancia para entender, comprender y aceptar esta deficiencia sanguínea. Agradezco por todo lo vivido, ya que fue lo que me ha ayudado a Orientar y guiar a mi hijo Ignacio que […]
Emma Hooper
When I was 12 years old I had a tonsillectomy nine days later I woke up haemorrhaging from the site of removal was taken by ambulance (and had a helicopter on stand by) to the John Hunter Hospital where they took my into theatre for a ten minute procedure to quarterize the site they attempted […]
Paula liliana Flórez guevara
Hola, mi nombre es Paula Flórez tengo 37 años y tengo un desorden de coagulación . Fui diagnosticada con trombopatía de granulos alfa. He recibido varias transfuciones de plaquetas ya que es la unica forma de tratar las hemorragias . Yo no puedo tomar ningun medicamento . Ya me hicieron la histerectomía pero gracias a […]
Deepak Kumar
My son his name is Master Chandra Prakash Sahu when he was just 3 months we seen on his body part green and blue color patches. We been to the child specialist he said these are the normal thing don’t worry about it. But day by day he was growing his activity was incrising very […]