English 
Erika & Esme Storm
I had extreme nosebleeds (gushing, 2 hours long, etc) throughout childhood and prolonged dental bleeding. When I was 12 I got my period and it was a nightmare from the start. 10 days long, clots, debilitating cramps all kept me from school and activities every month. I was put on the pill at age 16 […]
Jacqui Young
My name is Jacqui and I have von Willebrands type 1. I was diagnosed about 12 years ago when I lived in the UK. A friend and I capsized in a canoe. About an hour later we stopped for lunch and as I stood up to put on my jumper I heard a huge number […]
Linda Styles
Being the 4th child in a family of 5 children, I grew up knowing my older brother was different to other boys. Mum never let him play “rough” games, and there were the frequent trips to hospital. In the 60’s the only treatment was blood transfusions, which meant a day or over night in the […]
Thanh Lich Cao
I’m not going to talk about Hemophilia in the World Hemophilia Day, because it is ordinary for other people doing that. I want to do something different, something like a related story and gratefulness. Let’s start with story part. I was born with Hemophilia without inheritance. It means I got this disorder gift from nowhere […]
Raebecca H.
I’m Raebecca. I’m 17. I was diagnosed with severe type three von Willebrands Disease when I was about six months old. I was the very first to be diagnosed, but my parents and siblings also have it. I struggle with joint and mouth bleeds. I found out I had arthritic tissue in my knee when […]
Linda Wright
I was born in 1949 and very lucky to see one of the few hematologist in the world who could diagnose my rare bleeding disorder. I have congenital afibrinogenemia or no Factor I. By the age of ten, I was an expert in bleeding disorders. Often I found myself teaching doctors or nurses that girls […]
Jenna Lovell
I was diagnosed with VWD type 1 (no sub-classification, we don’t use those in Australia – yet) just before my 17th birthday, but struggled for years both before and after with very heavy menstrual bleeding, GI bleeds, nose bleeds, regular serious bruising, as well as what I now believe were undiagnosed and untreated micro and […]
Lauren Albert
My name is Lauren. I’m 25 years old and, despite bleeding excessively, carrying the gene, and receiving treatment for mild Haemophilia A, I still do not have a current official diagnosis recorded. Nothing other than ‘symptomatic carrier’. I only found out I was a carrier about 4 years ago. My little brother has severe Haemophilia […]
Kathleen Gerus
My name is Kathleen and I live in Michigan in the US. I was married to a man with hemophilia A back in the 1980s when HIV was in the blood supply. Nobody knew that this was such a big problem for people with bleeding disorders and their families. I learned this lesson in the […]
Michelle Cecil
I was one of the lucky ones being diagnosed shortly after my birth with VWD type one along with my two sisters. I was lucky, because I grew up my whole life knowing I had this condition, since I was diagnosed shortly after being born due to a family history. My most common symptoms are […]