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IKOU BIYOUKOU Fabrice
cc salut je m’appelle Fabrice IKOU BIYOUKOU, je suis infirmier au Centre Hospitalier de Libreville (CHUL) je m’investis dans l’hémophilie et sur les personnes atteintes de cette pathologie depuis déjà deux ans (2 ans) auprès du Docteur Léonie Esther LEDAGA médecin hématologue, grâce à qui je me suis lancé et prends en charge quotidiennement ces […]
Nabila Husseni
My name is Nabila Husseni and I am a para hemophilic i.e., Factor V deficiency. In times of exciting new developments in the care of people with bleeding disorders, especially in the treatment of hemophilia, Gender Equality and Outreaching has now been incorporated in the developing countries in the bleeding disorder organizations, which is applaudable. […]
IKOU FABRICE
CC salut je m’appelle Fabrice IKOU BIYOUKOU je suis infirmier au Centre Hospitalier Universitaire de Libreville (CHUL). je m’investis dans l’hémophilie et sur les personnes atteintes de cette pathologie depuis déjà deux ans ( 2 ans ) auprès du Docteur Léonie Esther LEDAGA Médecin hématologue grâce à qui je me suis lancé et prends en […]
Suvo Rahman
Greetings to everyone. Hope that the person who is reading my story is healthy and safe. Myself Suvo Rahman from Jessore,Bangladesh. I am going to share a story which is occured few days ago. One day, in noon I suddenly started to feel stomach ache. My family thought it was just a normal pain. But […]
Md. Abu Naeem
Myself Md. Abu Naeem & my age is 17. I am a student of class xii in a basic science group. I am from Bangladesh. I am going to share my story according to my hemophilia situation. I have already known about my bleeding disorder because of my elder brother was suffering a lot from […]
Feroz
Life of a boy suffering from hemophilia. I’m Feroz,haemophilia sufferer but my life never stops. Let me present to you the little idea of my life. Born in 15-03-1997. The current age is 24 years. At the age of nine months, at the time of hammering, he began to become slightly black in various places […]
OGNAGNA Yolande
Pédiatre exerçant depuis 20 ans, j’ai été confrontée à l’hémophilie pour la première fois il y a environ 6 ans. En 2015, j’ai reçu un papa accompagnant ses deux garçons de 3 et 11 ans hémophiles A .Le plus grand avait été circoncis à l’âge d’un an, ce qui avait révélé la maladie devant le […]
Habib Al Fahim
Habib Al Fahim 18 years old. I live in Gazipur Bangladesh. I am hemophilia B’ severe patient. Like every normal human being, I do not have dawn. Almost haemophilia causes bleeding and severe sleep apnea.Most of the time I try not to tell anyone.Because my pain spreads to everyone in the family.Dad goes for plasma, […]
التوئم /غازي وساري محمد غازي عودة
السلام عليكم ورحمة الله وبركاته أسعد الله أوقاتكم بكل خير انا والد الأطفال غازي و ساري من مواليد السعودية وهم هيموفيليا B ويعتبر المرض وراثي عن طريق الأم ونعاني بشدة من توفر العلاج بالسعودية لأننا غير سعودين واطمح بتوفر العلاج عن طريق الصليب الأحمر حول العالم بوظع حقيبة بها أفكار تساعد مريض الهيموفيليا ومن ضمن […]
Polash Hossain
My name is Palash Reza. I am 18 now. My father Mohammad Arif Ali is a wagon driver. Anyone who sees me will understand that I am suffering from a complex disease. I am a severe hemophilia B patient. My factor 9 level less than 1%. After cutting my navel at birth, my bleeding was […]