English 
Manuel Marquez Reales
Soy hemofilico con hemofilia tipo A me la detectaron cuando tenia 2 años de edad. La hemofilia afecto mis articulaciones, por lo cual me causo artrosis tengo tratamiento profilactico del factor VIII.
Nagesh K
Story of a Haemophiliac Dear friends, Today the 17th of April is World Haemophilia Day (Birthday of Frank Schnabel, a Canadian businessman born with severe haemophilia A and the founder of the World Federation of Haemophilia). So I, being a Person With Haemophilia (PWH), think this is the right time to share my experience with […]
Guadalupe
My son Jayden has Severe Hemophilia A and Von Willie brand type 1. We found out about Jayden’s hemophilia when he was 6 months old, when he started to crawl his stomach and elbows were all bruised. I kept being told by his pediatrician at the time that it was normal. I kept pushing telling […]
Savannah R.
10 months ago I would not have really understood what you were talking about if you said “hemophilia”…since our little boy has been born and was diagnosed with hemophilia at 1 day old, many emotions have raged through myself… joy and tears, fear and humor, anger, resentment, anxiety, stress… but overall love and compassion… Seeing […]
Alex Mallcu
En casa estamos.conmemorando el dia Mundial de la Hemofilia
Clarita Galarraga
Mi hija Luana Etchecopar Galarraga tiene 16 años y fue diagnosticada hace 4 años con deficit factor VII. Desde Paysandú Uruguay enviamos nuestros saludos a todos!
Manoj Kolukuluri
Hello everyone, I’m Manoj Kolukuluri a 20yrs young with severe factor-viii deficiency. I’m currently continuing my study in the Charted Accountancy stream. Now I’m going to share all my experiences and obstacles that I faced in my life. Since my childhood I’m living in Visakhapatnam. My first injury started with a deep cut on my […]
Masood Fareed Malik
Born in an emerging country with severe hemophilia, factor VIII deficiency, and at a young age diagnosed with co-infection was like a nightmare. Upon knowing my disease related complications, the whole world collapsed around me. Hopes were shattered and life seemed to have come to standstill. I have smelled the changing behaviors in my relationships. […]
Zeaul Haq Parvej
Hello & Good day to all of my listener , My name is Zeaul Haq Parvez …I’m sever HEMOPHILIA A patient…I’m an active member of HSB (Hemophilia Society Bangladesh) Currently in studying in Hon’s 1st year & I’m 19 years old…..Today I trying to write about the most event full story of my life related […]
ANGEL QUINTERO
Agradece por ser especial! Me llamo Ángel Quintero, fui diagnosticado con Hemofilia A severa a los 6 meses de nacido, ya tenia antecedentes familiares. Por mi condición y la ausencia de tratamiento en mi País, tuve una infancia bastante difícil con muchos episodios hemorragicos, mas sin embargo, el apoyo de mi familia y mis amigos […]