HI, I’m Nataraj, 28 years young male from India. I’m a person with severe Hemophilia A. Though I was showing symptoms since 3 months young baby, I was diagnosed only at the age of 6 (Fortunate enough I believe, lots of people are not diagnosed even till the age of 50+ years in their life, due to lack of awareness). Till the age of 6 my parents consulted about my condition with many doctors but not use because of lack of awareness. At the age of 6, I fell from hay stack and landed using my right foot which caused severe bleed in my right ankle, it was at that time only one doctor refereed me to a hematologist, that hematologist only suspected I may have a bleeding disorder and point us at right direction to Christian Medical College(CMC) Vellore, where I was diagnosed with Severe Hemophilia A. Ever since I was restricted from physical activities like playing and sports due to fear of injury. But , I was advice by mother to do things slowly and carefully so I may not end up in pain. I took her advice and I believe that saved me from lots of pain and protected my joints well. As the years went by we consulted many doctors in different medicine field, tried so many medicines, but what ever they promised never worked from me. At the age of 14 I lost hope in all the medicines and slowly started giving up on them. I focused on training my mind and took medicine only when I was not well. Due to lack of physical activity, I was gaining weight, by the age of 16 I was about 80kg. I wanted to reduce my weight so badly, and it was also causing problems in my joints. I started walking, cycling, but I was never able to reduce my weight, I never gave up on trying to be active. I exercised when ever I could. 2009 I attended my first youth camp where I learned about the importance of physiotherapy. I tried my best to do physiotherapy regularly and with in 6 months I was able to feel the difference at my target joint. In about 2 years I was able to recover my target joint and also that kept me away from getting spontaneous bleeds. I gave me more confidence and hope, I was turning point in my life and I started to involve more in our chapter activities, my passion to help others like me, made me stronger and healthier. I became the regional youth representative of south India for Hemophilia Federation (India) and seeing my enthusiasm our chapter secretary requested me to become the president at our local chapter. Our lobby with our city government hospital resulted in faster treatment and better awareness among the doctors in there. Now were are trying with nearby city government hospitals too. Since the beginning we are giving equal importance to females with bleeding disorders and they are also treated equally at the government hospital. We have identified about 15 females with various bleeding disorders and got them registered at our chapter. Since July 2014 I changed my diet to very nutritious diet and was able to reduce about 25 kgs in 2 years time. This not only improved my quality of life but and also showed me an alternative way to lead a healthy life with hemophilia with out / less factor treatment. Now I can jog of about 10km and do workouts also. I’m sharing my experience which changed my life with others, those who tried also replied me with a positive response.