For many people with bleeding disorders, pain is a part of daily life. More than an uncomfortable annoyance, pain can affect every aspect of daily life—the ability to work a full day, attend school or engage in routine activities. Pain can limit physical abilities and dramatically affect relationships.
Every person with a bleeding disorder deals with pain at one time or another, often less than effectively. As a female bleeder (factor 5 deficient) – “It’s at the point where I’ve learned to live with the pain and live a anxiety and panic free life.” “Very little is needed to make a happy life; it is all within yourself, in your way of thinking.”
People with bleeding disorders should remain alerted when it comes to new or different pain. New pain could signal a bleed or an acute pain that needs treatment before it becomes chronic.
Recently, a few days ago I suffered from acute pain in the stomach at midnight. Immediately my dad rushed to bring in FFP (Fresh Frozen Plasma). On the next day also pain continued but it was little bit subsidized. I continued to take plasma for the next 2 days and simultaneously went for Sonography. It was concluded in Sonography that the cyst in ovary got rapture. When you feel pain, the first order of business is to identify the cause and eliminate it, in my case I first took the remedy as the same pain I have gone through previously also and it couldn’t be assumed that it could be a normal gastric pain or any other.
“It seems so simple, but most people with pain don’t think about
what caused it.” People will usually immobilize or do something to
relieve the discomfort at that moment, but not think about what caused it. The number one thing is to identify what the probable cause is and stop doing that.
I may be pessimistic in some things but related to problems of hemophilia I take it as a challenge and face it bravely so that it doesn’t make me weak in any aspect as I think I am very much close to God because he has chosen me for this. I’ve become more flexible in that respect. Changing a difficult situation isn’t always possible. By making a conscious effort you can train yourself to be more positive about life.
I am not a person who shares the pain to get sympathy and to be in the center of attraction, I don’t like this all things. I don’t want the people to say ‘poor girl’ etc., In fact, I want the people to say look at her such a brave and lively person. Life is forward momentum. If things are already feeling hard, why choose a miserable perspective to compound the despair? It can be hard – A heroic effort, even – to stand in the pain and choose an empowering way to look at a situation. Problems are often a question of perspective.If you change your perspective, you may see your situation from a more positive point of view.
recently, on 28th November while driving to office I met with an accident and got fractured in my left leg. When I was taken to the hospital; doctor informed us that Tibia bone is broken and surgery is needed to fix the bone. I started crying aloud that I don’t want any surgery to be done.. Luckily by the grace of god doctor said that bone can be fixed with the help of cast but that needs to be kept for 1 and a half month. Me and my family were ok with that; as been a factor 5 and Fresh Frozen Plasma is the only treatment – risks factors increases for surgery. 10 days after cast was placed on leg were terrible because of acute pain. And due to all this I got pissed off. I started questioning to god that why me? Every time God puts me in tough and hard circumstances which makes my confidence level drop down. All this time I am being reminded on a daily basis that the only one stopping me is me. I want to be unstoppable.
Last but not least I would say – “Something will grow from all you are growing through and it will be YOU”
“Women Can Be Bleeders Too”