Myself Md. Abu Naeem & my age is 17. I am a student of class xii in a basic science group. I am from Bangladesh.
I am going to share my story according to my hemophilia situation. I have already known about my bleeding disorder because of my elder brother was suffering a lot from a bleeding disorder. As usually I was diagnosed when I was four years old. I am a moderate Hemophilia ‘A’ patient. At that time I was suffering for my gum bleeding but I had taken a few bags of fresh frozen plasma. In general, I felt disappointed with my own condition. Because I couldn’t play an outdoor game & I faced many social stigma due to my disorder.
One day confidentially I had gone to play cricket but unfortunately, I was hit my own right knee by my bat. On this spot, I was shocked for a few minutes. After that, I had gone through totally ambulatory conditions. I live in a village that’s why I didn’t manage plasma or factor concentration at the right time. So my right knee swelled up as much as possible. My family managed a few bags of plasma from Jashore in Bangladesh, but that was too late. I was suffering for my knee joint four years I couldn’t walk in a single step at that time. My family specially my dad was very supportive. During that period I continued my study from my home and my dad was bearing myself all of my exam period. Now I am fine for my good understanding related to a bleeding disorder. I am involved in youth activities in our country. Always I believe that if I grow my confidence level one day I will overcome all the difficulties.
Our Hemophilia Society of Bangladesh helps us all the critical situations while we faced any problem. Thank you Hemophilia Society of Bangladesh and World Federation of Hemophilia.
#HappyWorldHemophiliaDay