My son Jayden has Severe Hemophilia A and Von Willie brand type 1. We found out about Jayden’s hemophilia when he was 6 months old, when he started to crawl his stomach and elbows were all bruised. I kept being told by his pediatrician at the time that it was normal. I kept pushing telling them there was something wrong until one time he had a lump/bruise by his ribs and they told us he had a skin abscess and would be referred to a general surgeon to evaluate. I was not happy with the diagnosis since it wasn’t the only bruise/lump he had. On his 6 month check up I brought the issue to them again and was told they were going to do labs work just so I could be more comfortable but that she was pretty sure everything was ok and I was worrying to much since I was a first time mom. Two days later we got the call to follow up with hematology the next day. He was diagnosed with Severe Hemophilia A. He Got his port placed at 9 months. Life has not been easy since the diagnosis we have our ups and downs. Sometimes a lot of downs. After starting his factor infusions continued to always covered in bruises I thought it was normal, I was used to see him with bruises all the time. Summer time was the worst if he had shorts on we would get ugly looks at the stores. Then one day he started having really bad joint bleeds they decided to run more test and found out he had von Willie brand type 1. Right after that he was put on a factor product for hemophilia a and von Willie brand. It’s been more than two years from that and today Jayden is 7 years old and his life is almost as normal as any 7 year old with the exception of no contact sports and other activities that could hurt him. The bruises on this legs, hands and everywhere else he used to get them are gone, one here and there. I can definitely say life has given us some of the biggest lesson but we would not have it any other way. Jayden is the happiest little boy, he gets excited about going to the Dr.’s. he is probably the only boy at his pediatrician that doesn’t cry when getting shots because he’s so used to it. ER visit for him are normal he’s used to it and usually is a very good patient to the nurses. He is slowly learning more and more about his hemophilia and von Willie brand, and it’s very excited when he meets others with the same bleeding disorders as him