My name is Courtney and I am 21years old, I am the only one out of my large family to carry on the gene for Haemophilia. I had my son when I was just 17years old and i myself had never been tested to see my percentage of been a carrier, when Cody was a day old he had a blood test and within a couple of days I got the news “your son has Haemophilia A”
Been so young at the time and not expecting this outcome at all I almost felt lost as there was no one else I could talk to in my family about how to deal with this.
BUT I did deal with it, with the help of online Haemophilia communities I learned so much about the condition. My son is now 4 years old, never needed factor 8 injections (so far) and soon the be a big brother! I am nervous to find out the gender of this baby but at the same time the advancements already made for blood clotting disorders is remarkable and I know my children will always be treated right x