Chloe Christos

Chloe Christos

Australia

[Born with Von Willebrand Disease, low Factor 8, and Ehlers Danlos Syndrome] I was the first of my family to receive a diagnosis of vWD at 19 years old following 5 years of continually menstruating and requiring weekly iron infusions whilst still anaemic. I suffer from mucosal bleeding, muscle bleeds and soft tissue joint bleeds. Now managed by prophylaxis. After 8 years of persisting my fight for adequate care, at the age of 27 I finally obtained access to my blood product treatment. It has significantly changed my life and my period is 4 days long now. This was largely due to the lack of medical data, education amongst clinicians, and awareness globally. I shared my story to the world on 17th April 2016 which went viral globally, it has connected me to hundreds of thousands of women around the world also affected by bleeding disorders and still counting. I am personally committed to being an global advocate and actively partaking in this positive change for women. THANK YOU World Federation of Hemophilia for ‘Hearing My Voice’! <3 Chloe Christos

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Chloe Christos

Australia

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