My name is chandan Kumar , suffering from severe Hemophilia a with positive inhibitor .I was born in a lower middle class family in a most undeveloped state of India. Hemophilia is unknown to all of my family . Whenever I got extenal bleed in childhood ,my parent went to a local medical practitioner ,they tried to stop bleed but failed ,so he referred me to a medical college near to my village ,where doctor said to my father, your son may be a suspected case of Hemophilia and they need plasma all time.
But in case of internal bleed ,I totally depends upon the home remedies and pain killer that was prescribed by a local medical practitioner.These type of treatment even worse my situation.Almost 15 days of a month I spent on bed with nonbearable pain.
In 90s awareness regarding Hemophilia was almost negligible ,I didn’t know the besic treatment like rice and factor.In month of june year 2000 ,when I was studying in standard 8,I saw a news on a local Hindi news paper regarding the awareness program of Hemophilia in the capital city of my state Bihar.Next day I went that place with my father and finally sun rose for me .I got to know all about Hemophilia society and basic treatment .Same day I got membership of Patna Chapter .But till that day my all joint got arthritis except finger and left knee.
But thanks to God ,finally I got to know about physiotherapy ,met with expert doctor and I had been started the exercise.I went to children camp , attended almost all state level meeting . Awareness camp ,and ultimately I got confidence and now I am a engineer ,worked as a software engineer ,banker .
I had been working as a youth group coordinator of Patna Chapter ,now I am vice president of bhojpur chapter.To help Pwhs of my country ,my state is my priority ,we arrange awareness meeting ,many programs , lobbying with government for free ahf and best treatment .

Thanking you
Chandan Kumar