Ten years ago I never imagined I would grow from a regular person with bleeding disorder into well-known global leader of bleeding disorders’ and rare diseases’ communities as I am today. Fighting for better treatment for bleeders in Latvia, helping friends around the world, constantly learning and overcoming myself, I count this as blessing rather than curse.
I was diagnosed with von Willebrand disease, one of many bleeding disorders, around 30 years ago, and there is just one more step to confirm my family’s and my diagnosis left. Unfortunately, not yet possible in my country. Lack of diagnosis and proper treatment influenced many of my life choices.
I am happy I can do my best to help other girls and women around the world live their best. I am sure it is worth it and the journey becomes shorter with every step we make.