Marlene Beijevelt
Discover Marlene’s story as part of the World Hemophilia Day 2025 video series: Hi, I am Marlene Beijevelt and I’m working in the hemophilia treatment centre in Amsterdam, The Netherlands. I think that women and girls with bleeding disorders deserve better care and more understanding and at least faster diagnosis. In our treatment centre we’re […]
Tatiana Bathfield
Discover Tatiana’s story as part of the World Hemophilia Day 2025 video series: 17 years ago, I gave birth to a baby girl suffering from severe factor 7 deficiency. From the moment our daughter was diagnosed, our lives changed dramatically. With little to no information about this very rare bleeding disorder, we started navigating a […]
Anupama Pattiye
Discover Anupama’s story as part of the World Hemophilia Day 2025 video series: Hello, this is Anupama, a member of the girls and women with inherited bleeding disorders committee of WFH. I’m from India and I have a mild deficiency of factor VIII. But I got my diagnosis only in my 30s. It’s very, very […]
Yannick Collé
Discover Yannick’s story as part of the World Hemophilia Day 2025 video series: Hello, my name is Yannick, I’m 61 and now I know that I’m living with mild hemophilia A. I will speak about my journey for recognition. Years of wondering; I lived for years with symptoms, bruises, bleeding after tooth extraction, every menstrual […]
Eliza VanZweden
Discover Eliza’s story as part of the World Hemophilia Day 2025 video series: Hi, my name is Eliza. I live with Glanzmann thrombasthenia, a rare platelet disorder. Even though I was diagnosed from a young age, I have constant severe bleeds which means trips to the emergency room for a platelet transfusion which is my […]
Dawn Rotellini
Here’s a message from Dawn as part of the World Hemophilia Day 2025 video series: Hi, it’s Dawn Rotellini with the World Federation of Hemophilia. I am the chair of the International Women and Girls with Bleeding Disorders Committee. The reason I think this is so, so important to use World Hemophilia Day as a […]
Cesar Garrido
On behalf of the World Federation of Hemophilia, I am excited to share with you that the theme for World Hemophilia Day 2025 is “Access for all: Women and girls bleed too.” Recognizing women and girls with bleeding disorders marks a major milestone in our community. These individuals are unfortunately disproportionately underdiagnosed and underserved. It’s […]
Imtiaj Muhammad Abu Ahsan

Sometimes the stories of life seem like the stories of books, my story was like that, it can also be called the story of getting life back. It was mid-year 2014 when I first needed surgery for gallbladder stone removal through laparoscopy in Chattogram, Bangladesh in a private Hospital. The operation was successful but the […]
Cindy Ann Nogueras Jones

I found this page while searching about my hemophilia diagnosis. My Name is Cindy Nogueras, 28, from Puerto Rico. Back in July 2023, while I was unknowing fighting for my life was diagnosed with Hemophilia factor XII also known as HAF deficiency, Hageman factor deficiency, Hageman trait. Factor XII deficiency is a rare genetic blood […]
Verónica Vázquez medrano

Yo bien agradecida con la lic.laura Paez y la doc.laura villareal de la clínica de hemofilia del hospital universitario.ya once años que mi hijo es atendido ahí ,es una excelente atención con su gran equipo multidiciplinario,nos han enseñado tantas cosas ,de como debemos llevar una buena profilaxis y poder nosotras mismas infundir a nuestros hijos.gracias […]