My name is Ariel Yonatan Alin, I am 27 years old. I come from Surakarta, Central Java, Indonesia.
I am an individual with hemophilia A. I was detected with hemophilia when I was 6 years old, at that time I went to Sarjito Hospital Yogyakarta for treatment.
My experience dealing with hemophilia is very complex, because no one in my extended family suffers from hemophilia apart from me.
And I have overprotective parents.
The hardest experience was when I was little, I could only see my friends playing football.
Until I was an adult, I still regularly underwent treatment at the hospital, I was injected with factor 8 approximately once a week.
Currently I have completed my master’s degree in informatics, and hope to become a lecturer.
I hope that hemophilia treatment through genetic therapy can soon be implemented throughout the world, and at a much more affordable price.
#WHD #worldhemophiliaday #world #hemophilia #day #for #better #treatment