“No matter how long the night is, the morning is sure to come”

I don’t know how to right a story but I will share my short story in my own words. In my point of view hemophilia is the same life with extra hard struggle, which gives you extra skills, extra strength and extra patience. In my birth my parents knew that I have some weird abilities hahah yeah joke! Which ruined my whole childhood.

After all those historical Lockdown days of the world, people understand how you feel isolated in your schools, in your home, in your Eid/Christmas. That’s what I feel for past 15 years of my life with Deficiency of Factor VIII. But in hemophilia’s isolation gives you strength and safety, which prevents Joint Deformity. That’s what I learn!

I remember the night when I was 14, crying a whole night because of severe knee bleed. My father tried every game to change my mind from the pain but nothing worked! And hopelessly said Son: I can not take your pain! And literally he tried everything but “No matter how long the night is, the morning is sure to come”.

After all those non aware years of hemophilia I heard about some hemophiliac communities which are working on hemophilia . I start searching about these communities which are working for themselves. And then I met someone in 2013 who said I have some planes. And we start building a  hemophiliac team and then we start monthly meetings, awareness and advocacy with government and government hospitals. I got the first Factor VIII injection from our HTC in 2014. Then finally I got opportunity volunteer on both National/International. Currently I am working as a National  Youth Group Member of Hemophilia Foundation- Pakistan.

I got the fully funded scholarship for BS education in 2017 and after four year I completed my Bachelor degree in Agriculture.