Anne-Louise Cruickshank’s story as part of the World Hemophilia Day 2026 video series:

In our country, the first point of contact is often the primary healthcare nurse, followed by referral for laboratory testing. However, because the health system carries a higher burden of communicable diseases, awareness of rare conditions such as hemophilia are limited. Socioeconomic barriers further delay access, with many families not reaching clinics for accurate diagnosis. This is especially important in rural areas where many laboratories lack the capacity to form the necessary tests on site. To help bridge these gaps. Train Team Ophelia Nurse Coordinators provide essential support and counselling. We find hemophilia and pictures from the World Federation of Hemophilia very useful in teaching parents and their families about hemophilia.